Question:
The doc diagnosed me several years ago based on symptoms and what was left in my stomach after a long period of time. Not a pretty sight. I was diagnosed with an upper GI. They did the test at 930am, and what I had eaten at 930pm was still in there. > There is a test you can have. I believe you > swallow something radioactive, and it is tracked through your > digestive system.
Gastric emptying scan. They give you a thimble full of radioactive oatmeal and if it goes thru in an hour or so, you supposedly *don’t* have gastroparesis. So, they can’t make up their minds whether I have it or not. My theory is that between the time I was originally diagnosed, I got my blood sugar very well into control, and my condition improved. When they did the GES, I wasn’t having any problems at all, therefore no diagnosis. I’ve been having control problems ever since January when I had to switch to Avandia due to problems with Glucophage. (I’ve since made the switch back) Right now I’m having digestive problems galore. I’m also choking on my food quite often. Seems it gets stuck, spasms start, it seems to be working it’s way back up while I try to BREATHE, I start these loud hiccups, then it finally goes on down. Can’t even wash it down with liquids at that point. But at least I haven’t made it back to the constant throwing up. Marilyn, has the doctor had you try Reglan? I had a problem with Propulsid, and I had to discontinue it long before it was ever taken off the market. Reglan worked well for me, forced me to digest better, and I got a lot of relief with it. I need to get a new Rx myself, come to think of it. Good luck, I know you are miserable 
Bev Remove the "SpamFree" for email, please.
Response:
> stated that aspartame that has undergone heat destruction tastes really > weird and is undrinkable
Geez, I don’t remember that conversation, but I do remember thinking that we had so many similarities that it was spooky! > i really fell for you right now, and only wish i had a cure for you > Dr told me that if i threw up for ANY reason to drink riopan to fend off the > affects of the acid relux…….
I will keep that in mind. My best defense is a good offense (uh-oh, I sound like I like football). I have done as Mack mentioned, stuck to foods that are easy to digest and have keep my bgs as low as I can (haven’t gone over 117 for the last couple days). Maybe I found another silver lining! — Marilyn
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> I was diagnosed with an upper GI. They did the test at 930am, and what I had > eaten at 930pm was still in there.
Bev, I am nodding my head in understanding with this. It is a horrible feeling to have. I am sorry that you too have to deal with this (and such awful other things) I took Reglan for a few years but it caused severe depression. I was lucky that the doc recognized this and pulled me off of it. This was when Propulsid was first introduced. This was a wonder drug for me. I still have a bottle of it left but am afraid to take any. I started on Celerex after and it was removed from the market and don’t know if there is any problem in taking them both. Here’s to better days for both of us! — Marilyn
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My Doc put me on Pletal (Cilostazol) It is fairly recent I think. It is supposed to help with the pain, and is a blood thinner. but may take up to three months to show any effects! They found blockages behind one knee, and in both thighs, but at manageable levels. My surgeon showed me the prints he made up of the poloroids he took of my stomach when he opened it up. If it wasn’t my stomach, I would say it was wicked cool. A section of my small intestine is blown up the size of my forearm. Then there is a picture of it sliced open. The whole blockage was peanut butter, mixed with corn. I know, corn is a lousy choice to eat, but it is butter and sugar corn on the cob season round here, and I can’t be good all the GD time. Going for my cardiac tests next Monday. I need a week to rest after last week. Sorry to hear you have already been Dx’d with Gastroparesis. My last message to you won’t make much sense (I thought maybe you had a bit of food poisoning) I don’t know how I am supposed to handle this. Well for one, no more corn, or peanut butter. If I get a belly ache, am I supposed to worry about another blockage? I don’t know how the hell you and Guy can put up with it. Keep your chin up kid! We’re rootin’ for ya! Sleepyman – Hide quoted text — Show quoted text -> Yes, my surgeon and me are in total agreement. It sucks. I didn’t have > any problems with nausea. There is a test you can have. I believe you > swallow something radioactive, and it is tracked through your > digestive system. I didn’t have any off tastes in my mouth. My problem > was constipation. I just assumed it was a side effect of the combo of > 15 meds. I take each day. Marilyn, see a gasto-interologist, and do it > soon. I wouldn’t wish the crappy (lol) surgery I had on anyone! Or > MOST anyone, >Thanks John. The doc diagnosed me several years ago based on symptoms and >what was left in my stomach after a long period of time. Not a pretty sight. >I wouldn’t wish your surgery on anyone either! I just saw an ad for some >medicine for claudation. Did the doc put you on this? When are your heart >tests?
An Eye for an Eye, Makes the Whole World, Blind. Mohandas K. Gandhi
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Just a thought, but if you were doing the technicolor yawn all night, you may have a case of food poisoning. Contrary to popular belief, if you get a dose, it takes at least 24 hours to show up. I used to love it when somebody was looking to get a comp meal at any restaurant I managed, by comming up and trying to tell me that there was something wrong with the food, it just made them sick. Sleepy – Hide quoted text — Show quoted text – >I typically wait until after the meal is over, sometimes up to an hour >later, to take my basal insulin. > Several foods seem to be part of the problem. Still > searching. Another thing that showed up after > heart surgery. > Even a trace of black pepper seems to cause me > problems. >I cannot seem to figure out if I have a food trigger. The only thing I ate >Saturday was a BBQ pork sandwich and an extra helping of the pork. It could >have been something I ate on Friday. >This seems to happen when I am under a lot of stress.
An Eye for an Eye, Makes the Whole World, Blind. Mohandas K. Gandhi
Response:
stated that aspartame that has undergone heat destruction tastes really weird and is undrinkable i really fell for you right now, and only wish i had a cure for you Dr told me that if i threw up for ANY reason to drink riopan to fend off the affects of the acid relux……. kate – Hide quoted text — Show quoted text -> Marilyn…… sorry to hear that you are having these trying times > does riopan help when you are in this condition??? to at least counter act > the stomach acids that are coming up as well??? > wish i could help > You did, more than you know. Thanks! > Erythormycin helps move things along. I took two doses as soon as I could > keep it down. I think this may have helped move things through the ole > pipes. > I’m just glad that I didn’t get dehydrated (the silver lining!) > — > Marilyn
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– Hide quoted text — Show quoted text -> I have periods of "lazy digestion". It make me afraid > to lead inject insulin. So I tolerate a blood sugars > peak to preclude a hypo. >Guy, >I typically wait until after the meal is over, sometimes up to an hour >later, to take my basal insulin. > Several foods seem to be part of the problem. Still > searching. Another thing that showed up after > heart surgery. > Even a trace of black pepper seems to cause me > problems. >I cannot seem to figure out if I have a food trigger. The only thing I ate >Saturday was a BBQ pork sandwich and an extra helping of the pork. It could >have been something I ate on Friday. >This seems to happen when I am under a lot of stress.
I am sure you know this but condiments can be a problem. So many things in different foods. Remember I go into a very messy mode with a few bites of shrimp. Later found my deceased sister has an identical problem. Now that my life is so much simpler I have less problems in several areas. I still think stress is fundamental problem where we are prone to "catch diseases" for some reason. Guess stress is a trigger or an immunity depressing factor. Guess we will suffer together on the GI problems. Guy
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> Yes, my surgeon and me are in total agreement. It sucks. I didn’t have > any problems with nausea. There is a test you can have. I believe you > swallow something radioactive, and it is tracked through your > digestive system. I didn’t have any off tastes in my mouth. My problem > was constipation. I just assumed it was a side effect of the combo of > 15 meds. I take each day. Marilyn, see a gasto-interologist, and do it > soon. I wouldn’t wish the crappy (lol) surgery I had on anyone! Or > MOST anyone,
Thanks John. The doc diagnosed me several years ago based on symptoms and what was left in my stomach after a long period of time. Not a pretty sight. I wouldn’t wish your surgery on anyone either! I just saw an ad for some medicine for claudation. Did the doc put you on this? When are your heart tests? — Marilyn
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>Not to be too graphic, but >there is a yeast-like taste that alerts me to upcoming problems. Does >anyone else have this?. > Yes, I do, although I usually deal with only 1 day of vomiting and a > few days of diarrhea, then everything goes back to normal. I switch > to easily digested foods, which also means it is usually higher carb.
Mack, If you were close enough I would hug you. Thank you. It helps so much to know that I am not alone. I’ve heard of other horror stories with the gastroparesis but never anyone who had the awful tasting belches. I managed to not get dehydrated and have to go get an IV. That’s the first time in many years that I’ve been able to do this. A couple years ago it was so bad that my kidneys started shutting down. I figure that one of these times they will just decide to give it up for good. But not this time! Thanks. — Marilyn
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Thanks Judy. – Hide quoted text — Show quoted text -> I just need to vent. > Ah, geez, Mar. > Thinking of ya. > Judy > Type 1, 25+ years
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– Hide quoted text — Show quoted text -> I just need to vent. > Ah, geez, Mar. > Thinking of ya. > Judy > Type 1, 25+ years
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> Marilyn…… sorry to hear that you are having these trying times > does riopan help when you are in this condition??? to at least counter act > the stomach acids that are coming up as well??? > wish i could help
You did, more than you know. Thanks! Erythormycin helps move things along. I took two doses as soon as I could keep it down. I think this may have helped move things through the ole pipes. I’m just glad that I didn’t get dehydrated (the silver lining!) — Marilyn
Response:
> I have periods of "lazy digestion". It make me afraid > to lead inject insulin. So I tolerate a blood sugars > peak to preclude a hypo.
Guy, I typically wait until after the meal is over, sometimes up to an hour later, to take my basal insulin. > Several foods seem to be part of the problem. Still > searching. Another thing that showed up after > heart surgery. > Even a trace of black pepper seems to cause me > problems.
I cannot seem to figure out if I have a food trigger. The only thing I ate Saturday was a BBQ pork sandwich and an extra helping of the pork. It could have been something I ate on Friday. This seems to happen when I am under a lot of stress. — Marilyn
Response:
> I just need to vent.
Ah, geez, Mar. Thinking of ya. Judy Type 1, 25+ years
Response:
Yes, my surgeon and me are in total agreement. It sucks. I didn’t have any problems with nausea. There is a test you can have. I believe you swallow something radioactive, and it is tracked through your digestive system. I didn’t have any off tastes in my mouth. My problem was constipation. I just assumed it was a side effect of the combo of 15 meds. I take each day. Marilyn, see a gasto-interologist, and do it soon. I wouldn’t wish the crappy (lol) surgery I had on anyone! Or MOST anyone, Sleepy >I just need to vent. >I spent last night on the bathroom floor with my head inside the porcelain >bowl. I’m starving right now but afraid to eat for fear that things will >not digest. At least the bGs have been good, no hypos. >Someone else mentioned about food "fermenting" in the stomach which is >exactly what I have always felt was happening. Not to be too graphic, but >there is a yeast-like taste that alerts me to upcoming problems. Does >anyone else have this?.
An Eye for an Eye, Makes the Whole World, Blind. Mohandas K. Gandhi
Response:
I just need to vent. I spent last night on the bathroom floor with my head inside the porcelain bowl. I’m starving right now but afraid to eat for fear that things will not digest. At least the bGs have been good, no hypos. Someone else mentioned about food "fermenting" in the stomach which is exactly what I have always felt was happening. Not to be too graphic, but there is a yeast-like taste that alerts me to upcoming problems. Does anyone else have this?. — Marilyn
Response:
>I just need to vent. >I spent last night on the bathroom floor with my head inside the porcelain >bowl. I’m starving right now but afraid to eat for fear that things will >not digest. At least the bGs have been good, no hypos. >Someone else mentioned about food "fermenting" in the stomach which is >exactly what I have always felt was happening. Not to be too graphic, but >there is a yeast-like taste that alerts me to upcoming problems. Does >anyone else have this?.
I have periods of "lazy digestion". It make me afraid to lead inject insulin. So I tolerate a blood sugars peak to preclude a hypo. Several foods seem to be part of the problem. Still searching. Another thing that showed up after heart surgery. Even a trace of black pepper seems to cause me problems. Guy
Response:
Marilyn…… sorry to hear that you are having these trying times does riopan help when you are in this condition??? to at least counter act the stomach acids that are coming up as well??? wish i could help kate
… – Hide quoted text — Show quoted text -> I just need to vent. > I spent last night on the bathroom floor with my head inside the porcelain > bowl. I’m starving right now but afraid to eat for fear that things will > not digest. At least the bGs have been good, no hypos. > Someone else mentioned about food "fermenting" in the stomach which is > exactly what I have always felt was happening. Not to be too graphic, but > there is a yeast-like taste that alerts me to upcoming problems. Does > anyone else have this?. > — > Marilyn
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> Joe. > — > Enjoy the ride, enjoy the ride. > http://www.soundclick.com/bands/9/joesanchez.htm > http://www.trainwreckblues.com > http://www.garageband.com/artist/bigstevetrainwreck > Our new CD is now for sale! > — > Are you rearranging letters? > Bud 
