Posts tagged: Good Luck

Gastorpareisis Sucks

Question:

The doc diagnosed me several years ago based on symptoms and what was left in my stomach after a long period of time. Not a pretty sight. I was diagnosed with an upper GI.  They did the test at 930am, and what I had eaten at 930pm was still in there.   > There is a test you can have. I believe you > swallow something radioactive, and it is tracked through your > digestive system.

Gastric emptying scan.  They give you a thimble full of radioactive oatmeal and if it goes thru in an hour or so, you supposedly *don’t* have gastroparesis. So, they can’t make up their minds whether I have it or not.  My theory is that between the time I was originally diagnosed, I got my blood sugar very well into control, and my condition improved.  When they did the GES, I wasn’t having any problems at all, therefore no diagnosis. I’ve been having control problems ever since January when I had to switch to Avandia due to problems with Glucophage. (I’ve since made the switch back) Right now I’m having digestive problems galore.  I’m also choking on my food quite often.  Seems it gets stuck, spasms start, it seems to be working it’s way back up while I try to BREATHE, I start these loud hiccups, then it finally goes on down.  Can’t even wash it down with liquids at that point. But at least I haven’t made it back to the constant throwing up. Marilyn, has the doctor had you try Reglan?  I had a problem with Propulsid, and I had to discontinue it long before it was ever taken off the market. Reglan worked well for me, forced me to digest better, and I got a lot of relief with it.  I need to get a new Rx myself, come to think of it. Good luck, I know you are miserable :( Bev Remove the "SpamFree" for email, please.  

Response:

> stated that aspartame that has undergone heat destruction tastes really > weird and is undrinkable

Geez, I don’t remember that conversation, but I do remember thinking that we had so many similarities that it was spooky! > i really fell for you right now, and only wish i had a cure for you > Dr told me that if i threw up for ANY reason to drink riopan to fend off the > affects of the acid relux…….

I will keep that in mind.  My best defense is a good offense (uh-oh, I sound like I like football).  I have done as Mack mentioned, stuck to foods that are easy to digest and have keep my bgs as low as I can (haven’t gone over 117 for the last couple days).   Maybe I found another silver lining! — Marilyn

Response:

> I was diagnosed with an upper GI.  They did the test at 930am, and what I had > eaten at 930pm was still in there.

Bev, I am nodding my head in understanding with this.  It is a horrible feeling to have.  I am sorry that you too have to deal with this (and such awful other things) I took Reglan for a few years but it caused severe depression.  I was lucky that the doc recognized this and pulled me off of it.  This was when Propulsid was first introduced.  This was a wonder drug for me.  I still have a bottle of it left but am afraid to take any.  I started on Celerex after and it was removed from the market and don’t know if there is any problem in taking them both. Here’s to better days for both of us! — Marilyn

Response:

My Doc put me on Pletal (Cilostazol) It is fairly recent I think. It is supposed to help with the pain, and is a blood thinner. but may take up to three months to show any effects! They found blockages behind one knee, and in both thighs, but at manageable levels. My surgeon showed me the prints he made up of the poloroids he took of my stomach when he opened it up. If it wasn’t my stomach, I would say it was wicked cool. A section of my small intestine is blown up the size of my forearm. Then there is a picture of it sliced open. The whole blockage was peanut butter, mixed with corn. I know, corn is a lousy choice to eat, but it is butter and sugar corn on the cob season round here, and I can’t be good all the GD time. Going for my cardiac tests next Monday. I need a week to rest after last week. Sorry to hear you have already been Dx’d with Gastroparesis. My last message to you won’t make much sense (I thought maybe you had a bit of food poisoning)  I don’t know how I am supposed to handle this. Well for one, no more corn, or peanut butter. If I get a belly ache, am I supposed to worry about another blockage? I don’t know how the hell you and Guy can put up with it. Keep your chin up kid! We’re rootin’ for ya! Sleepyman – Hide quoted text — Show quoted text -> Yes, my surgeon and me are in total agreement. It sucks. I didn’t have > any problems with nausea. There is a test you can have. I believe you > swallow something radioactive, and it is tracked through your > digestive system. I didn’t have any off tastes in my mouth. My problem > was constipation. I just assumed it was a side effect of the combo of > 15 meds. I take each day. Marilyn, see a gasto-interologist, and do it > soon. I wouldn’t wish the crappy (lol) surgery I had on anyone! Or > MOST anyone, >Thanks John.  The doc diagnosed me several years ago based on symptoms and >what was left in my stomach after a long period of time. Not a pretty sight. >I wouldn’t wish your surgery on anyone either!  I just saw an ad for some >medicine for claudation.  Did the doc put you on this?  When are your heart >tests?

An Eye for an Eye, Makes the Whole World, Blind. Mohandas K. Gandhi

Response:

Just a thought, but if you were doing the technicolor yawn all night, you may have a case of food poisoning. Contrary to popular belief, if you get a dose, it takes at least 24 hours to show up. I used to love it when somebody was looking to get a comp meal at any restaurant I managed, by comming up and trying to tell me that there was something wrong with the food, it just made them sick. Sleepy – Hide quoted text — Show quoted text – >I typically wait until after the meal is over, sometimes up to an hour >later, to take my basal insulin. > Several foods seem to be part of the problem.  Still > searching.  Another thing that showed up after > heart surgery. > Even a trace of black pepper seems to cause me > problems. >I cannot seem to figure out if I have a food trigger.  The only thing I ate >Saturday was a BBQ pork sandwich and an extra helping of the pork.  It could >have been something I ate on Friday. >This seems to happen when I am under a lot of stress.

An Eye for an Eye, Makes the Whole World, Blind. Mohandas K. Gandhi

Response:

stated that aspartame that has undergone heat destruction tastes really weird and is undrinkable i really fell for you right now, and only wish i had a cure for you Dr told me that if i threw up for ANY reason to drink riopan to fend off the affects of the acid relux……. kate – Hide quoted text — Show quoted text -> Marilyn…… sorry to hear that you are having these trying times > does riopan help when you are in this condition??? to at least counter act > the stomach acids that are coming up as well??? > wish i could help > You did, more than you know.  Thanks! > Erythormycin helps move things along.  I took two doses as soon as I could > keep it down.  I think this may have helped move things through the ole > pipes. > I’m just glad that I didn’t get dehydrated (the silver lining!) > — > Marilyn

Response:

– Hide quoted text — Show quoted text -> I have periods of "lazy digestion".  It make me afraid > to lead inject insulin.  So I tolerate a blood sugars > peak to preclude a hypo. >Guy, >I typically wait until after the meal is over, sometimes up to an hour >later, to take my basal insulin. > Several foods seem to be part of the problem.  Still > searching.  Another thing that showed up after > heart surgery. > Even a trace of black pepper seems to cause me > problems. >I cannot seem to figure out if I have a food trigger.  The only thing I ate >Saturday was a BBQ pork sandwich and an extra helping of the pork.  It could >have been something I ate on Friday. >This seems to happen when I am under a lot of stress.

I am sure you know this but condiments can be a problem.  So many things in different foods. Remember I go into a very messy mode with a few bites of shrimp.  Later found my deceased sister has an identical problem. Now that my life is so much simpler I have less problems in several areas. I still think stress is fundamental problem where we are prone to "catch diseases" for some reason. Guess stress is a trigger or an immunity depressing factor.  Guess we will suffer together on the GI  problems.                                        Guy

Response:

> Yes, my surgeon and me are in total agreement. It sucks. I didn’t have > any problems with nausea. There is a test you can have. I believe you > swallow something radioactive, and it is tracked through your > digestive system. I didn’t have any off tastes in my mouth. My problem > was constipation. I just assumed it was a side effect of the combo of > 15 meds. I take each day. Marilyn, see a gasto-interologist, and do it > soon. I wouldn’t wish the crappy (lol) surgery I had on anyone! Or > MOST anyone,

Thanks John.  The doc diagnosed me several years ago based on symptoms and what was left in my stomach after a long period of time. Not a pretty sight. I wouldn’t wish your surgery on anyone either!  I just saw an ad for some medicine for claudation.  Did the doc put you on this?  When are your heart tests? — Marilyn

Response:

>Not to be too graphic, but >there is a yeast-like taste that alerts me to upcoming problems.  Does >anyone else have this?. > Yes, I do, although I usually deal with only 1 day of vomiting and a > few days of diarrhea, then everything goes back to normal.  I switch > to easily digested foods, which also means it is usually higher carb.

Mack, If you were close enough I would hug you.  Thank you.  It helps so much to know that I am not alone.  I’ve heard of other horror stories with the gastroparesis but never anyone who had the awful tasting belches. I managed to not get dehydrated and have to go get an IV.  That’s the first time in many years that I’ve been able to do this.  A couple years ago it was so bad that my kidneys started shutting down.  I figure that one of these times they will just decide to give it up for good.  But not this time! Thanks. — Marilyn

Response:

Thanks Judy. – Hide quoted text — Show quoted text -> I just need to vent. > Ah, geez, Mar. > Thinking of ya. > Judy > Type 1, 25+ years

Response:

– Hide quoted text — Show quoted text -> I just need to vent. > Ah, geez, Mar. > Thinking of ya. > Judy > Type 1, 25+ years

Response:

> Marilyn…… sorry to hear that you are having these trying times > does riopan help when you are in this condition??? to at least counter act > the stomach acids that are coming up as well??? > wish i could help

You did, more than you know.  Thanks! Erythormycin helps move things along.  I took two doses as soon as I could keep it down.  I think this may have helped move things through the ole pipes. I’m just glad that I didn’t get dehydrated (the silver lining!) — Marilyn

Response:

> I have periods of "lazy digestion".  It make me afraid > to lead inject insulin.  So I tolerate a blood sugars > peak to preclude a hypo.

Guy, I typically wait until after the meal is over, sometimes up to an hour later, to take my basal insulin. > Several foods seem to be part of the problem.  Still > searching.  Another thing that showed up after > heart surgery. > Even a trace of black pepper seems to cause me > problems.

I cannot seem to figure out if I have a food trigger.  The only thing I ate Saturday was a BBQ pork sandwich and an extra helping of the pork.  It could have been something I ate on Friday. This seems to happen when I am under a lot of stress. — Marilyn

Response:

> I just need to vent.

Ah, geez, Mar. Thinking of ya. Judy Type 1, 25+ years

Response:

Yes, my surgeon and me are in total agreement. It sucks. I didn’t have any problems with nausea. There is a test you can have. I believe you swallow something radioactive, and it is tracked through your digestive system. I didn’t have any off tastes in my mouth. My problem was constipation. I just assumed it was a side effect of the combo of 15 meds. I take each day. Marilyn, see a gasto-interologist, and do it soon. I wouldn’t wish the crappy (lol) surgery I had on anyone! Or MOST anyone, Sleepy >I just need to vent. >I spent last night on the bathroom floor with my head inside the porcelain >bowl.  I’m starving right now but afraid to eat for fear that things will >not digest.  At least the bGs have been good, no hypos. >Someone else mentioned about food "fermenting" in the stomach which is >exactly what I have always felt was happening.  Not to be too graphic, but >there is a yeast-like taste that alerts me to upcoming problems.  Does >anyone else have this?.

An Eye for an Eye, Makes the Whole World, Blind. Mohandas K. Gandhi

Response:

I just need to vent. I spent last night on the bathroom floor with my head inside the porcelain bowl.  I’m starving right now but afraid to eat for fear that things will not digest.  At least the bGs have been good, no hypos. Someone else mentioned about food "fermenting" in the stomach which is exactly what I have always felt was happening.  Not to be too graphic, but there is a yeast-like taste that alerts me to upcoming problems.  Does anyone else have this?. — Marilyn

Response:

>I just need to vent. >I spent last night on the bathroom floor with my head inside the porcelain >bowl.  I’m starving right now but afraid to eat for fear that things will >not digest.  At least the bGs have been good, no hypos. >Someone else mentioned about food "fermenting" in the stomach which is >exactly what I have always felt was happening.  Not to be too graphic, but >there is a yeast-like taste that alerts me to upcoming problems.  Does >anyone else have this?.

I have periods of "lazy digestion".  It make me afraid to lead inject insulin.  So I tolerate a blood sugars peak to preclude a hypo. Several foods seem to be part of the problem.  Still searching.  Another thing that showed up after heart surgery. Even a trace of black pepper seems to cause me problems.                                          Guy

Response:

Marilyn…… sorry to hear that you are having these trying times does riopan help when you are in this condition??? to at least counter act the stomach acids that are coming up as well??? wish i could help kate

… – Hide quoted text — Show quoted text -> I just need to vent. > I spent last night on the bathroom floor with my head inside the porcelain > bowl.  I’m starving right now but afraid to eat for fear that things will > not digest.  At least the bGs have been good, no hypos. > Someone else mentioned about food "fermenting" in the stomach which is > exactly what I have always felt was happening.  Not to be too graphic, but > there is a yeast-like taste that alerts me to upcoming problems.  Does > anyone else have this?. > — > Marilyn

Response:

OT: Update….concerning my mom.

Question:

>Well, I know nothing more to add other than what I know now to tell you, >or told you here. Thanks for hearing me out. If I could wave a magic >wand and make it disappear for mom, I would. But, I will keep praying >for her. I feel at ease knowing you all understand my situation, for >those of you who cared to reply and even have been down that road. I may >keep up to date with her for those of you who may or would like to know. >Sincere Thanks, >Kimberly Hedrick

((((((((((Kimberly)))))))))))) Good luck with your Mom and Dad. Jeanne Type 2  Diagnosed 05/28/02 189/172/120

Response:

Dear Kimberly, Please do keep us updated on how your mom is doing.  And how "you" are doing as well as your dear dad. You are going through a rough time of it and I know that being able to come here and "talk" will help you out.  It is so hard to watch a loved one in pain knowing that there isn’t much you can do for them. I am glad that your mom has you and your dad!  It has to help her on some level even though she is in a lot of pain.  You are so right that our "furbabies" do help us when we are in pain, whether physical or mental, and I am glad that your mom has "Smokie".  My mom had a kitty that lived for 20 years that was her "baby".  She "loved" that kitty and the kitty was great company for her during some stressfull times. I am praying that your mom will be able to receive the help that she needs and that this pain will stop, or at least, ease up for her. (((((((((((Kimberly))))))))))))) Best, Dot Type 2  Diag 8/2001 – Hide quoted text — Show quoted text – > I didn’t get around till late here to let on about my mother. > Apparently, dad moved his appointment up till next week. So, mom only > went today. The doctor cleaned the wound up for her and told her that if > it didn’t heal up in a few weeks that amputation would have to take > place. That means she may lose it above the knee. To Dot, my mothers > situation fits your moms to the "T". > My mom has been to the ER quite a few times, and it seems to me that she > has been passed around to one doctor to the next, just giving her meds > and all to no avail. She even went a few times to a doctor who does > Chelation therapy and it was costly and the doctor was 90 or plus miles > away. There was one closer, but insurance wouldn’t cover the > treatment…regardless. They would screw up with her bloodwork, and had > unnecessisary blood tests done. I seen my mother disgusted many times. > Now this pain she suffered for so long has mentally traumatized her, and > made her so depressed. I am so angry at how she has went through all of > this HELL. Now she faces the possibility of losing her leg. Not to > mention that she has had back surgery last year to remove spurs from her > spine, suffers both ruematoid and osteo arthritis, and fibro. > She feels no better now. Still agonizing in pain as I write this. They > gave her antibiotics and all and probably more pain meds. I guess the > doctors don’t know what more to do for her. She isn’t getting enough > blood flow to her leg. I hate to say it, but she may be in more pain > with the amputation she will get than the pain now she is suffering. She > will have to be put in a nursing home probably, cuz her sister had > amputations and is in one, but they are a well to do familiy ( her son ( > my cousin ) and family ) and can afford it. Maybe I am wrong? But, I > don’t know how my dad has held his sanity over this ordeal with mom. He > has had surgery too, and has anxiety, gastric and acid reflux problems. > Dad is strong, I suppose. > Mom was calling for "Smokie" who is our cat. She is moms baby. Sleeps > with her on her bed or since her problem has progressed with her leg, > the cat goes off to sleep on the couch in the living room. Mom loves the > cat though. We all know how animals play a part in our lives, and so the > cat does for mom. > Well, I know nothing more to add other than what I know now to tell you, > or told you here. Thanks for hearing me out. If I could wave a magic > wand and make it disappear for mom, I would. But, I will keep praying > for her. I feel at ease knowing you all understand my situation, for > those of you who cared to reply and even have been down that road. I may > keep up to date with her for those of you who may or would like to know. > Sincere Thanks, > Kimberly Hedrick

Response:

- Hide quoted text — Show quoted text – > I didn’t get around till late here to let on about my mother. > Apparently, dad moved his appointment up till next week. So, mom only > went today. The doctor cleaned the wound up for her and told her that if > it didn’t heal up in a few weeks that amputation would have to take > place. That means she may lose it above the knee. To Dot, my mothers > situation fits your moms to the "T". > My mom has been to the ER quite a few times, and it seems to me that she > has been passed around to one doctor to the next, just giving her meds > and all to no avail. She even went a few times to a doctor who does > Chelation therapy and it was costly and the doctor was 90 or plus miles > away. There was one closer, but insurance wouldn’t cover the > treatment…regardless. They would screw up with her bloodwork, and had > unnecessisary blood tests done. I seen my mother disgusted many times. > Now this pain she suffered for so long has mentally traumatized her, and > made her so depressed. I am so angry at how she has went through all of > this HELL. Now she faces the possibility of losing her leg. Not to > mention that she has had back surgery last year to remove spurs from her > spine, suffers both ruematoid and osteo arthritis, and fibro. > She feels no better now. Still agonizing in pain as I write this. They > gave her antibiotics and all and probably more pain meds. I guess the > doctors don’t know what more to do for her. She isn’t getting enough > blood flow to her leg. I hate to say it, but she may be in more pain > with the amputation she will get than the pain now she is suffering. She > will have to be put in a nursing home probably, cuz her sister had > amputations and is in one, but they are a well to do familiy ( her son ( > my cousin ) and family ) and can afford it. Maybe I am wrong? But, I > don’t know how my dad has held his sanity over this ordeal with mom. He > has had surgery too, and has anxiety, gastric and acid reflux problems. > Dad is strong, I suppose. > Mom was calling for "Smokie" who is our cat. She is moms baby. Sleeps > with her on her bed or since her problem has progressed with her leg, > the cat goes off to sleep on the couch in the living room. Mom loves the > cat though. We all know how animals play a part in our lives, and so the > cat does for mom. > Well, I know nothing more to add other than what I know now to tell you, > or told you here. Thanks for hearing me out. If I could wave a magic > wand and make it disappear for mom, I would. But, I will keep praying > for her. I feel at ease knowing you all understand my situation, for > those of you who cared to reply and even have been down that road. I may > keep up to date with her for those of you who may or would like to know. > Sincere Thanks, > Kimberly Hedrick

 I am so sorry the hear about mom, my prayers are with you and  mom Ira T2

Response:

I didn’t get around till late here to let on about my mother. Apparently, dad moved his appointment up till next week. So, mom only went today. The doctor cleaned the wound up for her and told her that if it didn’t heal up in a few weeks that amputation would have to take place. That means she may lose it above the knee. To Dot, my mothers situation fits your moms to the "T". My mom has been to the ER quite a few times, and it seems to me that she has been passed around to one doctor to the next, just giving her meds and all to no avail. She even went a few times to a doctor who does Chelation therapy and it was costly and the doctor was 90 or plus miles away. There was one closer, but insurance wouldn’t cover the treatment…regardless. They would screw up with her bloodwork, and had unnecessisary blood tests done. I seen my mother disgusted many times. Now this pain she suffered for so long has mentally traumatized her, and made her so depressed. I am so angry at how she has went through all of this HELL. Now she faces the possibility of losing her leg. Not to mention that she has had back surgery last year to remove spurs from her spine, suffers both ruematoid and osteo arthritis, and fibro. She feels no better now. Still agonizing in pain as I write this. They gave her antibiotics and all and probably more pain meds. I guess the doctors don’t know what more to do for her. She isn’t getting enough blood flow to her leg. I hate to say it, but she may be in more pain with the amputation she will get than the pain now she is suffering. She will have to be put in a nursing home probably, cuz her sister had amputations and is in one, but they are a well to do familiy ( her son ( my cousin ) and family ) and can afford it. Maybe I am wrong? But, I don’t know how my dad has held his sanity over this ordeal with mom. He has had surgery too, and has anxiety, gastric and acid reflux problems. Dad is strong, I suppose. Mom was calling for "Smokie" who is our cat. She is moms baby. Sleeps with her on her bed or since her problem has progressed with her leg, the cat goes off to sleep on the couch in the living room. Mom loves the cat though. We all know how animals play a part in our lives, and so the cat does for mom. Well, I know nothing more to add other than what I know now to tell you, or told you here. Thanks for hearing me out. If I could wave a magic wand and make it disappear for mom, I would. But, I will keep praying for her. I feel at ease knowing you all understand my situation, for those of you who cared to reply and even have been down that road. I may keep up to date with her for those of you who may or would like to know. Sincere Thanks, Kimberly Hedrick

Response:

I am no Dr., but it sounds to me like your Mom should be in a hospital with IV Anti-biotics to try to save her leg, and IV Morphine to help with the pain. Sleepy – Hide quoted text — Show quoted text – >I didn’t get around till late here to let on about my mother. >Apparently, dad moved his appointment up till next week. So, mom only >went today. The doctor cleaned the wound up for her and told her that if >it didn’t heal up in a few weeks that amputation would have to take >place. That means she may lose it above the knee. To Dot, my mothers >situation fits your moms to the "T". >My mom has been to the ER quite a few times, and it seems to me that she >has been passed around to one doctor to the next, just giving her meds >and all to no avail. She even went a few times to a doctor who does >Chelation therapy and it was costly and the doctor was 90 or plus miles >away. There was one closer, but insurance wouldn’t cover the >treatment…regardless. They would screw up with her bloodwork, and had >unnecessisary blood tests done. I seen my mother disgusted many times. >Now this pain she suffered for so long has mentally traumatized her, and >made her so depressed. I am so angry at how she has went through all of >this HELL. Now she faces the possibility of losing her leg. Not to >mention that she has had back surgery last year to remove spurs from her >spine, suffers both ruematoid and osteo arthritis, and fibro. >She feels no better now. Still agonizing in pain as I write this. They >gave her antibiotics and all and probably more pain meds. I guess the >doctors don’t know what more to do for her. She isn’t getting enough >blood flow to her leg. I hate to say it, but she may be in more pain >with the amputation she will get than the pain now she is suffering. She >will have to be put in a nursing home probably, cuz her sister had >amputations and is in one, but they are a well to do familiy ( her son ( >my cousin ) and family ) and can afford it. Maybe I am wrong? But, I >don’t know how my dad has held his sanity over this ordeal with mom. He >has had surgery too, and has anxiety, gastric and acid reflux problems. >Dad is strong, I suppose. >Mom was calling for "Smokie" who is our cat. She is moms baby. Sleeps >with her on her bed or since her problem has progressed with her leg, >the cat goes off to sleep on the couch in the living room. Mom loves the >cat though. We all know how animals play a part in our lives, and so the >cat does for mom. >Well, I know nothing more to add other than what I know now to tell you, >or told you here. Thanks for hearing me out. If I could wave a magic >wand and make it disappear for mom, I would. But, I will keep praying >for her. I feel at ease knowing you all understand my situation, for >those of you who cared to reply and even have been down that road. I may >keep up to date with her for those of you who may or would like to know. >Sincere Thanks, >Kimberly Hedrick

An Eye for an Eye, Makes the Whole World, Blind. Mohandas K. Gandhi

Response:

ping dr work & dave: pain management

Question:

Austrailia…and codeee wants to go there?????? — Bill Work

– Hide quoted text — Show quoted text -> Katharine Are you in the USA?  I think not, because I would HATE to think that > a US doctor would tell a patient that he needs "permission from the government" > to prescribe MSContin, Oxycontin or Methadone.  Sounds like you may do better > with a pain management specialist.  good luck.

Response:

Do you know that there’s a site called Pain World, in Australia?  It’s a discussion group, but is not usenet.    Good people ….. if you’d like the url, let me know. — Harley

Response:

– Hide quoted text — Show quoted text -> You won’t get an entire day’s worth of analgesia from this dosage, but it > certainly is worth trying. Since this medication lasts 4 to 6 hours, *unless > you were instructed otherwise* (You know that you have to follow your > Physician’s specific instructions if these were given)  I would recommend > 1/2 tablet along with your other medication to see if you can tolerate the > drug, and if it provides any relief at all in low dose, if you were given > dosing "freedom" for this trial prescription. Since your upper limit, as > defined by your current MD, is 1 and 1/2 tablet per day, this will give you > 6 doses per 24 hours.

Not sure where you got 6 doses from – 1/2 tablet at a time is three doses to get to the 1 1/2 total for the day. Anyway, I’ll give it a try, and see how I respond. The doc said to start with half a tablet once a day, and work my way up to three times a day. My main concern is that there’s 20 in the pack – only a week’s worth at the prescribed dosage. I assume I need to taper down off them? Anyway, off to the chemist to fill the script :) snipped > Also, If you see your Physician prior to pain management, ask for some > samples of Celebrex. COX II meds do work for some people very well, and is > worth trying, even when other NSAIDS have failed. Taken after the evening > meal (and 3 hours before bedtime-heartburn) Celebrex has been very effective > for several of my clients as an adjunct to pain management.

That’s what he was going to try with me, but as inflamation isn’t the problem, I don’t know how they could help. And I’m a bit worried about the side-effects. Also, it seemed like he just picked the name of the drug out of a hat, rather than it being something that he considered along with other possibilities, so I didn’t really trust what he was saying. Does adjunct mean in addition to other pain meds? > I knew that Australia’s Medicare had some prior approval requirements for > certain drugs-are the expensive SR opiates the only ones restricted? Opiates > in general?

snipped I don’t know how it works here, I’ll soon find out I suppose! > Also, give a Chemist a call and see if MS Contin and Oxycontin are available > in Australia. Canada has both, and I can see no reason that "Oz" would > exclude these two meds!

Just done that – looks like they are. But the doc said the long-acting Oxycontin is only available as a suppository at this stage! Pills coming soon I think. Katharine Maxwell.

Response:

  Weather plays a big part in how I feel.  Can you tell me how you can tell the difference?  Humidity really causes me pain also.  Humidity effects my whole body especially my hands, neck and knees.  What anti -inflammatory work for you?  I just tried Vioxx and have nothing good to say about it. See ya. Rob

– Hide quoted text — Show quoted text -> Sorry Rob…didn’t mean to hurt your head! > Weekends are for fun, not for thinking…I agree! > Thanks for the info, BTW. I have both osteoarthritis and > DDD in the same spot, too..lumbar spine. But I know the difference in > how they feel at different times, but that’s just me. > Weather is only a factor for my osteo, not my DDD. > Anyway, enjoy the rest of your weekend! > Best to you, > Trailingvine >The Merriam-Webster Dictionary states >Osteoarthritis : arthritis marked by degeneration of the cartilage and bone >of joints. >I was told by my orthopedic surgeon that Osteoarthritis is the brood term >used.  DDD (Degenerative Disc Disease), DJD( Degenerative Joint Disease), >DFD (Degenerative Facet Disease) are more specific as to the location of >Osteoarthritis. >The radiologist’s report referring to my MRI also calls it Osteo in one >sentence and then DDD in the next.  If they are two different conditions, I >have them both in one location. Osteo by definition means bone. Arthritis >is : inflammation of a joint or joints resulting in pain and swelling. I am >told that the definition depends on it’s source and is argumentative among >health care professionals.  Sorta like what came first the chicken or the >egg. > Now you went and made me think!  It’s the weekend, it is not time to think. >http://www.ccohs.ca/oshanswers/diseases/osteoart.html#_1_1 >Rob Hartley >> Rob.. >> DDD and osteoarthritis are 2 different conditions. >> DDD is a disease of the spinal discs, where they degenerate and fall >> apart. >> Osteoarthritis is the most common form of arthritis, taking place in >> the joints. Most people who suffer from DDD also get osteoarthritis in >> the spine, which is where you are getting confused, I think. >> Dr. Work and others can go more in depth than I can on this, but I >> know that I am correct in that they are different diseases. >> Take care, >> Trailingvine >>  "To live happily is an inward power of the soul" >>                   Marcus Aurelius >> >Hi, I’m not 100% positive but I think Osteoarthritis is the same thing as >> >DDD and DJD (degenerative joint disease).  I also have Osteoarthritis and >> >found that Relafen has helped me.  Relafen is a NSAID and I think since >> >everyone is different that you must experiment with different drugs until >> >you find the one(s) that works.  I tried the new drug (Vioxx) and it >doesn’t >> >do diddly for me.  I always go back to the Relafen (1000 mgs/day). I >> >sincerely hope you find the combination that works and you have a >relatively >> >pain free life. >> >Rob >> ><snip> message >> ><snip> >> >> > > > > > He suggested something called celebrex, which he said is new. >I >> >> asked >> >> > > him what was in it, and he looked it up in the book and showed me. >> >> It >> >> > > said it was a COX-2 inhibitor. He said something action on >> >> > > prostaglandin… and that it was like the anti-inflammatories. The >> >> > > book mentioned side effects such as stomach problems, but he said >> >> few >> >> > > people had these problems. >> >> > > Anyway, it looked like an NSAID to me, which I’ve had two courses >> >> of, >> >> > > and they’ve had absolutely no affect. He said it also wasn’t just >> >> > > that, but also acted as a pain killer, but I wasn’t convinced. >Plus, >> >> > > the book said it was indicated for conditions such as >> >> osteoarthritis, >> >> > > and that’s nothing to do with what I’ve got (DDD). >> >> > > So, I brought out the big guns, and layed out on the table my >> >> > > printouts of info on Morphine Sulphate, and Oxycodone. He said he’d >> >> be >> >> > > prepared to give me a script for Oxycodone, but only one at this >> >> > > stage, as he has to get permission from the government as it’s a >> >> > > restricted drug. Plus, only the short-acting one is available in >> >> > > tablet form – the long-acting one only as a suppository (it’s >coming >> >> > > in tablet form soon apparently). He was wary of prescribing >Morphine >> >> > > Sulphate due to the restrictions, and he feels he should go step by >> >> > > step up to them rather than directly to them. He sees Morphine as >> >> > > being one step up from Oxycodone. >> >> > > So, we concluded that I’d be better off going to a pain management >> >> > > specialist, who deals with this kind of stuff all the time. That >> >> makes >> >> > > sense to me, but I wanted to give him a fair go first. But when he >> >> > > kept bringing up the problem of the addictive properties of these >> >> > > drugs… that kind of made up my mind :) At least he was pleasant >> >> > > about the whole thing, and was happy to hear what I had to say. >> >> > > Anyway, I’ve got a script for the Oxycodone. Is it worthwhile >> >> filling >> >> > > it? It’s for 5 mg tablets, to work my way up from 1/2 tablet a day >> >> to >> >> > > 1 1/2 tablets a day. Or should I just stick to the panadeine forte? >> >> > > (paracetamol 500mg, codeine phosphate 30mg), which I know works >> >> > > (although makes me feel a bit strange, but helps with the pain). >> >> > > Now I just have to find a pain specialist who’s not afraid to >> >> > > prescribe opiods if they are appropriate! I’ve got a couple of >leads >> >> > > from http://www.chronicpaininc.com/ and will be following them up. >> >> > > That’s my update! >> >> > > — >> >> > > Katharine Maxwell >> >> > > spamblock in action. Work it out! >> >> Before you buy. > " Because you have the most marvelous youth, and youth is the one thing worth having." >                     Oscar Wilde

Response:

Sorry Rob…didn’t mean to hurt your head! Weekends are for fun, not for thinking…I agree! Thanks for the info, BTW. I have both osteoarthritis and DDD in the same spot, too..lumbar spine. But I know the difference in how they feel at different times, but that’s just me. Weather is only a factor for my osteo, not my DDD. Anyway, enjoy the rest of your weekend! Best to you, Trailingvine – Hide quoted text — Show quoted text ->The Merriam-Webster Dictionary states >Osteoarthritis : arthritis marked by degeneration of the cartilage and bone >of joints. >I was told by my orthopedic surgeon that Osteoarthritis is the brood term >used.  DDD (Degenerative Disc Disease), DJD( Degenerative Joint Disease), >DFD (Degenerative Facet Disease) are more specific as to the location of >Osteoarthritis. >The radiologist’s report referring to my MRI also calls it Osteo in one >sentence and then DDD in the next.  If they are two different conditions, I >have them both in one location. Osteo by definition means bone.  Arthritis >is : inflammation of a joint or joints resulting in pain and swelling. I am >told that the definition depends on it’s source and is argumentative among >health care professionals.  Sorta like what came first the chicken or the >egg. > Now you went and made me think!  It’s the weekend, it is not time to think. >http://www.ccohs.ca/oshanswers/diseases/osteoart.html#_1_1 >Rob Hartley > Rob.. > DDD and osteoarthritis are 2 different conditions. > DDD is a disease of the spinal discs, where they degenerate and fall > apart. > Osteoarthritis is the most common form of arthritis, taking place in > the joints. Most people who suffer from DDD also get osteoarthritis in > the spine, which is where you are getting confused, I think. > Dr. Work and others can go more in depth than I can on this, but I > know that I am correct in that they are different diseases. > Take care, > Trailingvine >  "To live happily is an inward power of the soul" >                   Marcus Aurelius > >Hi, I’m not 100% positive but I think Osteoarthritis is the same thing as > >DDD and DJD (degenerative joint disease).  I also have Osteoarthritis and > >found that Relafen has helped me.  Relafen is a NSAID and I think since > >everyone is different that you must experiment with different drugs until > >you find the one(s) that works.  I tried the new drug (Vioxx) and it >doesn’t > >do diddly for me.  I always go back to the Relafen (1000 mgs/day). I > >sincerely hope you find the combination that works and you have a >relatively > >pain free life. > >Rob > ><snip> > ><snip> > >> > > > > > He suggested something called celebrex, which he said is new. >I > >> asked > >> > > him what was in it, and he looked it up in the book and showed me. > >> It > >> > > said it was a COX-2 inhibitor. He said something action on > >> > > prostaglandin… and that it was like the anti-inflammatories. The > >> > > book mentioned side effects such as stomach problems, but he said > >> few > >> > > people had these problems. > >> > > Anyway, it looked like an NSAID to me, which I’ve had two courses > >> of, > >> > > and they’ve had absolutely no affect. He said it also wasn’t just > >> > > that, but also acted as a pain killer, but I wasn’t convinced. >Plus, > >> > > the book said it was indicated for conditions such as > >> osteoarthritis, > >> > > and that’s nothing to do with what I’ve got (DDD). > >> > > So, I brought out the big guns, and layed out on the table my > >> > > printouts of info on Morphine Sulphate, and Oxycodone. He said he’d > >> be > >> > > prepared to give me a script for Oxycodone, but only one at this > >> > > stage, as he has to get permission from the government as it’s a > >> > > restricted drug. Plus, only the short-acting one is available in > >> > > tablet form – the long-acting one only as a suppository (it’s >coming > >> > > in tablet form soon apparently). He was wary of prescribing >Morphine > >> > > Sulphate due to the restrictions, and he feels he should go step by > >> > > step up to them rather than directly to them. He sees Morphine as > >> > > being one step up from Oxycodone. > >> > > So, we concluded that I’d be better off going to a pain management > >> > > specialist, who deals with this kind of stuff all the time. That > >> makes > >> > > sense to me, but I wanted to give him a fair go first. But when he > >> > > kept bringing up the problem of the addictive properties of these > >> > > drugs… that kind of made up my mind :) At least he was pleasant > >> > > about the whole thing, and was happy to hear what I had to say. > >> > > Anyway, I’ve got a script for the Oxycodone. Is it worthwhile > >> filling > >> > > it? It’s for 5 mg tablets, to work my way up from 1/2 tablet a day > >> to > >> > > 1 1/2 tablets a day. Or should I just stick to the panadeine forte? > >> > > (paracetamol 500mg, codeine phosphate 30mg), which I know works > >> > > (although makes me feel a bit strange, but helps with the pain). > >> > > Now I just have to find a pain specialist who’s not afraid to > >> > > prescribe opiods if they are appropriate! I’ve got a couple of >leads > >> > > from http://www.chronicpaininc.com/ and will be following them up. > >> > > That’s my update! > >> > > — > >> > > Katharine Maxwell > >> > > spamblock in action. Work it out! > >> Before you buy.

" Because you have the most marvelous youth, and youth is the one thing worth having."                     Oscar Wilde

Response:

Thank you for your feedback, much appreciated. Katharine.

– Hide quoted text — Show quoted text –

Response:

The Merriam-Webster Dictionary states Osteoarthritis : arthritis marked by degeneration of the cartilage and bone of joints. I was told by my orthopedic surgeon that Osteoarthritis is the brood term used.  DDD (Degenerative Disc Disease), DJD( Degenerative Joint Disease), DFD (Degenerative Facet Disease) are more specific as to the location of Osteoarthritis. The radiologist’s report referring to my MRI also calls it Osteo in one sentence and then DDD in the next.  If they are two different conditions, I have them both in one location. Osteo by definition means bone.  Arthritis is : inflammation of a joint or joints resulting in pain and swelling. I am told that the definition depends on it’s source and is argumentative among health care professionals.  Sorta like what came first the chicken or the egg.  Now you went and made me think!  It’s the weekend, it is not time to think. http://www.ccohs.ca/oshanswers/diseases/osteoart.html#_1_1 Rob Hartley – Hide quoted text — Show quoted text -> Rob.. > DDD and osteoarthritis are 2 different conditions. > DDD is a disease of the spinal discs, where they degenerate and fall > apart. > Osteoarthritis is the most common form of arthritis, taking place in > the joints. Most people who suffer from DDD also get osteoarthritis in > the spine, which is where you are getting confused, I think. > Dr. Work and others can go more in depth than I can on this, but I > know that I am correct in that they are different diseases. > Take care, > Trailingvine >  "To live happily is an inward power of the soul" >                   Marcus Aurelius >Hi, I’m not 100% positive but I think Osteoarthritis is the same thing as >DDD and DJD (degenerative joint disease).  I also have Osteoarthritis and >found that Relafen has helped me.  Relafen is a NSAID and I think since >everyone is different that you must experiment with different drugs until >you find the one(s) that works.  I tried the new drug (Vioxx) and it doesn’t >do diddly for me.  I always go back to the Relafen (1000 mgs/day). I >sincerely hope you find the combination that works and you have a relatively >pain free life. >Rob ><snip> ><snip> >> > > > > > He suggested something called celebrex, which he said is new. I >> asked >> > > him what was in it, and he looked it up in the book and showed me. >> It >> > > said it was a COX-2 inhibitor. He said something action on >> > > prostaglandin… and that it was like the anti-inflammatories. The >> > > book mentioned side effects such as stomach problems, but he said >> few >> > > people had these problems. >> > > Anyway, it looked like an NSAID to me, which I’ve had two courses >> of, >> > > and they’ve had absolutely no affect. He said it also wasn’t just >> > > that, but also acted as a pain killer, but I wasn’t convinced. Plus, >> > > the book said it was indicated for conditions such as >> osteoarthritis, >> > > and that’s nothing to do with what I’ve got (DDD). >> > > So, I brought out the big guns, and layed out on the table my >> > > printouts of info on Morphine Sulphate, and Oxycodone. He said he’d >> be >> > > prepared to give me a script for Oxycodone, but only one at this >> > > stage, as he has to get permission from the government as it’s a >> > > restricted drug. Plus, only the short-acting one is available in >> > > tablet form – the long-acting one only as a suppository (it’s coming >> > > in tablet form soon apparently). He was wary of prescribing Morphine >> > > Sulphate due to the restrictions, and he feels he should go step by >> > > step up to them rather than directly to them. He sees Morphine as >> > > being one step up from Oxycodone. >> > > So, we concluded that I’d be better off going to a pain management >> > > specialist, who deals with this kind of stuff all the time. That >> makes >> > > sense to me, but I wanted to give him a fair go first. But when he >> > > kept bringing up the problem of the addictive properties of these >> > > drugs… that kind of made up my mind :) At least he was pleasant >> > > about the whole thing, and was happy to hear what I had to say. >> > > Anyway, I’ve got a script for the Oxycodone. Is it worthwhile >> filling >> > > it? It’s for 5 mg tablets, to work my way up from 1/2 tablet a day >> to >> > > 1 1/2 tablets a day. Or should I just stick to the panadeine forte? >> > > (paracetamol 500mg, codeine phosphate 30mg), which I know works >> > > (although makes me feel a bit strange, but helps with the pain). >> > > Now I just have to find a pain specialist who’s not afraid to >> > > prescribe opiods if they are appropriate! I’ve got a couple of leads >> > > from http://www.chronicpaininc.com/ and will be following them up. >> > > That’s my update! >> > > — >> > > Katharine Maxwell >> > > spamblock in action. Work it out! >> Before you buy.

Response:

Rob.. DDD and osteoarthritis are 2 different conditions. DDD is a disease of the spinal discs, where they degenerate and fall apart. Osteoarthritis is the most common form of arthritis, taking place in the joints. Most people who suffer from DDD also get osteoarthritis in the spine, which is where you are getting confused, I think. Dr. Work and others can go more in depth than I can on this, but I know that I am correct in that they are different diseases. Take care, Trailingvine  "To live happily is an inward power of the soul"                   Marcus Aurelius – Hide quoted text — Show quoted text ->Hi, I’m not 100% positive but I think Osteoarthritis is the same thing as >DDD and DJD (degenerative joint disease).  I also have Osteoarthritis and >found that Relafen has helped me.  Relafen is a NSAID and I think since >everyone is different that you must experiment with different drugs until >you find the one(s) that works.  I tried the new drug (Vioxx) and it doesn’t >do diddly for me.  I always go back to the Relafen (1000 mgs/day). I >sincerely hope you find the combination that works and you have a relatively >pain free life. >Rob ><snip> ><snip> > > > > > > He suggested something called celebrex, which he said is new. I > asked > > > him what was in it, and he looked it up in the book and showed me. > It > > > said it was a COX-2 inhibitor. He said something action on > > > prostaglandin… and that it was like the anti-inflammatories. The > > > book mentioned side effects such as stomach problems, but he said > few > > > people had these problems. > > > Anyway, it looked like an NSAID to me, which I’ve had two courses > of, > > > and they’ve had absolutely no affect. He said it also wasn’t just > > > that, but also acted as a pain killer, but I wasn’t convinced. Plus, > > > the book said it was indicated for conditions such as > osteoarthritis, > > > and that’s nothing to do with what I’ve got (DDD). > > > So, I brought out the big guns, and layed out on the table my > > > printouts of info on Morphine Sulphate, and Oxycodone. He said he’d > be > > > prepared to give me a script for Oxycodone, but only one at this > > > stage, as he has to get permission from the government as it’s a > > > restricted drug. Plus, only the short-acting one is available in > > > tablet form – the long-acting one only as a suppository (it’s coming > > > in tablet form soon apparently). He was wary of prescribing Morphine > > > Sulphate due to the restrictions, and he feels he should go step by > > > step up to them rather than directly to them. He sees Morphine as > > > being one step up from Oxycodone. > > > So, we concluded that I’d be better off going to a pain management > > > specialist, who deals with this kind of stuff all the time. That > makes > > > sense to me, but I wanted to give him a fair go first. But when he > > > kept bringing up the problem of the addictive properties of these > > > drugs… that kind of made up my mind :) At least he was pleasant > > > about the whole thing, and was happy to hear what I had to say. > > > Anyway, I’ve got a script for the Oxycodone. Is it worthwhile > filling > > > it? It’s for 5 mg tablets, to work my way up from 1/2 tablet a day > to > > > 1 1/2 tablets a day. Or should I just stick to the panadeine forte? > > > (paracetamol 500mg, codeine phosphate 30mg), which I know works > > > (although makes me feel a bit strange, but helps with the pain). > > > Now I just have to find a pain specialist who’s not afraid to > > > prescribe opiods if they are appropriate! I’ve got a couple of leads > > > from http://www.chronicpaininc.com/ and will be following them up. > > > That’s my update! > > > — > > > Katharine Maxwell > > > spamblock in action. Work it out! > Before you buy.

Response:

Hi, I’m not 100% positive but I think Osteoarthritis is the same thing as DDD and DJD (degenerative joint disease).  I also have Osteoarthritis and found that Relafen has helped me.  Relafen is a NSAID and I think since everyone is different that you must experiment with different drugs until you find the one(s) that works.  I tried the new drug (Vioxx) and it doesn’t do diddly for me.  I always go back to the Relafen (1000 mgs/day). I sincerely hope you find the combination that works and you have a relatively pain free life. Rob <snip>

<snip> – Hide quoted text — Show quoted text -> > > > > He suggested something called celebrex, which he said is new. I > asked > > him what was in it, and he looked it up in the book and showed me. > It > > said it was a COX-2 inhibitor. He said something action on > > prostaglandin… and that it was like the anti-inflammatories. The > > book mentioned side effects such as stomach problems, but he said > few > > people had these problems. > > Anyway, it looked like an NSAID to me, which I’ve had two courses > of, > > and they’ve had absolutely no affect. He said it also wasn’t just > > that, but also acted as a pain killer, but I wasn’t convinced. Plus, > > the book said it was indicated for conditions such as > osteoarthritis, > > and that’s nothing to do with what I’ve got (DDD). > > So, I brought out the big guns, and layed out on the table my > > printouts of info on Morphine Sulphate, and Oxycodone. He said he’d > be > > prepared to give me a script for Oxycodone, but only one at this > > stage, as he has to get permission from the government as it’s a > > restricted drug. Plus, only the short-acting one is available in > > tablet form – the long-acting one only as a suppository (it’s coming > > in tablet form soon apparently). He was wary of prescribing Morphine > > Sulphate due to the restrictions, and he feels he should go step by > > step up to them rather than directly to them. He sees Morphine as > > being one step up from Oxycodone. > > So, we concluded that I’d be better off going to a pain management > > specialist, who deals with this kind of stuff all the time. That > makes > > sense to me, but I wanted to give him a fair go first. But when he > > kept bringing up the problem of the addictive properties of these > > drugs… that kind of made up my mind :) At least he was pleasant > > about the whole thing, and was happy to hear what I had to say. > > Anyway, I’ve got a script for the Oxycodone. Is it worthwhile > filling > > it? It’s for 5 mg tablets, to work my way up from 1/2 tablet a day > to > > 1 1/2 tablets a day. Or should I just stick to the panadeine forte? > > (paracetamol 500mg, codeine phosphate 30mg), which I know works > > (although makes me feel a bit strange, but helps with the pain). > > Now I just have to find a pain specialist who’s not afraid to > > prescribe opiods if they are appropriate! I’ve got a couple of leads > > from http://www.chronicpaininc.com/ and will be following them up. > > That’s my update! > > — > > Katharine Maxwell > > spamblock in action. Work it out! > Before you buy.

Response:

Good luck with the new doc. Katherine, I think (bet)you’ll notiice a difference between the oxy and the stuff he was giving you.  I’m glad he didn’t blow up when you showed him the information. codeee – Hide quoted text — Show quoted text -> I hope you find some relief with the oxycodone…but it is short-acting.  At > least the pain doc will be able to tell how much you will need for > long-acting. > — > Bill Work > Well, I went back to the doctor, armed with all my research and > new-found knowledge of treatment of chronic pain. I explained that the > panamax (Tylenol) didn’t do a thing, except suppress my appetite a bit > (bringing it back to normal – the Luvox has increased it). Waited to > see what he’d say. > He said he’d like to step me up one level – panadeine (paracetamol > 500mg, codeine phosphate 8mg). > I said I’d prefer not to, as I wasn’t happy being on medication which > was designed for short-term pain, and is also short-acting – I need > something that’s long acting. He also suggested straight codeine, but > I balked at that for the same reason. > He suggested something called celebrex, which he said is new. I asked > him what was in it, and he looked it up in the book and showed me. It > said it was a COX-2 inhibitor. He said something action on > prostaglandin… and that it was like the anti-inflammatories. The > book mentioned side effects such as stomach problems, but he said few > people had these problems. > Anyway, it looked like an NSAID to me, which I’ve had two courses of, > and they’ve had absolutely no affect. He said it also wasn’t just > that, but also acted as a pain killer, but I wasn’t convinced. Plus, > the book said it was indicated for conditions such as osteoarthritis, > and that’s nothing to do with what I’ve got (DDD). > So, I brought out the big guns, and layed out on the table my > printouts of info on Morphine Sulphate, and Oxycodone. He said he’d be > prepared to give me a script for Oxycodone, but only one at this > stage, as he has to get permission from the government as it’s a > restricted drug. Plus, only the short-acting one is available in > tablet form – the long-acting one only as a suppository (it’s coming > in tablet form soon apparently). He was wary of prescribing Morphine > Sulphate due to the restrictions, and he feels he should go step by > step up to them rather than directly to them. He sees Morphine as > being one step up from Oxycodone. > So, we concluded that I’d be better off going to a pain management > specialist, who deals with this kind of stuff all the time. That makes > sense to me, but I wanted to give him a fair go first. But when he > kept bringing up the problem of the addictive properties of these > drugs… that kind of made up my mind :) At least he was pleasant > about the whole thing, and was happy to hear what I had to say. > Anyway, I’ve got a script for the Oxycodone. Is it worthwhile filling > it? It’s for 5 mg tablets, to work my way up from 1/2 tablet a day to > 1 1/2 tablets a day. Or should I just stick to the panadeine forte? > (paracetamol 500mg, codeine phosphate 30mg), which I know works > (although makes me feel a bit strange, but helps with the pain). > Now I just have to find a pain specialist who’s not afraid to > prescribe opiods if they are appropriate! I’ve got a couple of leads > from http://www.chronicpaininc.com/ and will be following them up. > That’s my update! > — > Katharine Maxwell > spamblock in action. Work it out!

Before you buy.

Response:

Katharine Are you in the USA?  I think not, because I would HATE to think that a US doctor would tell a patient that he needs "permission from the government" to prescribe MSContin, Oxycontin or Methadone.  Sounds like you may do better with a pain management specialist.  good luck.

Response:

Australia. — Katharine Maxwell spamblock in action. Work it out!

– Hide quoted text — Show quoted text -> Katharine Are you in the USA?  I think not, because I would HATE to think that > a US doctor would tell a patient that he needs "permission from the government" > to prescribe MSContin, Oxycontin or Methadone.  Sounds like you may do better > with a pain management specialist.  good luck.

Response:

Katharine, You won’t get an entire day’s worth of analgesia from this dosage, but it certainly is worth trying. Since this medication lasts 4 to 6 hours, *unless you were instructed otherwise* (You know that you have to follow your Physician’s specific instructions if these were given)  I would recommend 1/2 tablet along with your other medication to see if you can tolerate the drug, and if it provides any relief at all in low dose, if you were given dosing "freedom" for this trial prescription. Since your upper limit, as defined by your current MD, is 1 and 1/2 tablet per day, this will give you 6 doses per 24 hours. If you have no response, a whole tablet after supper or bedtime is worth an attempt to see how effective this is for you. Dr Work is (of course) very correct in that this trial Rx will at least give a baseline for the pain management physician to look at, and also some exposure to the medication for you to discuss with the pain management Physician.     You shouldn’t have to take two opiates (Oxycodone and codeine) but it looks like that is your only option right now. – Anyway, give it a fair go-sometimes it is surprising what will work for you. Also, If you see your Physician prior to pain management, ask for some samples of Celebrex. COX II meds do work for some people very well, and is worth trying, even when other NSAIDS have failed. Taken after the evening meal (and 3 hours before bedtime-heartburn) Celebrex has been very effective for several of my clients as an adjunct to pain management. I knew that Australia’s Medicare had some prior approval requirements for certain drugs-are the expensive SR opiates the only ones restricted? Opiates in general? I know that our system in the US severely monitors the use of opiates, but permission prior to prescribing (and dispensing) is not required by the government. It is required by some HMOs and Pharmacy Benefit Managers (PBMs) in the insurance industry-not for dispensing, but for payment. Also, give a Chemist a call and see if MS Contin and Oxycontin are available in Australia. Canada has both, and I can see no reason that "Oz" would exclude these two meds! Hope this information is of some value to you Dave/

– Hide quoted text — Show quoted text -> Well, I went back to the doctor, armed with all my research and > new-found knowledge of treatment of chronic pain. I explained that the > panamax (Tylenol) didn’t do a thing, except suppress my appetite a bit > (bringing it back to normal – the Luvox has increased it). Waited to > see what he’d say. > He said he’d like to step me up one level – panadeine (paracetamol > 500mg, codeine phosphate 8mg). > I said I’d prefer not to, as I wasn’t happy being on medication which > was designed for short-term pain, and is also short-acting – I need > something that’s long acting. He also suggested straight codeine, but > I balked at that for the same reason. > He suggested something called celebrex, which he said is new. I asked > him what was in it, and he looked it up in the book and showed me. It > said it was a COX-2 inhibitor. He said something action on > prostaglandin… and that it was like the anti-inflammatories. The > book mentioned side effects such as stomach problems, but he said few > people had these problems. > Anyway, it looked like an NSAID to me, which I’ve had two courses of, > and they’ve had absolutely no affect. He said it also wasn’t just > that, but also acted as a pain killer, but I wasn’t convinced. Plus, > the book said it was indicated for conditions such as osteoarthritis, > and that’s nothing to do with what I’ve got (DDD). > So, I brought out the big guns, and layed out on the table my > printouts of info on Morphine Sulphate, and Oxycodone. He said he’d be > prepared to give me a script for Oxycodone, but only one at this > stage, as he has to get permission from the government as it’s a > restricted drug. Plus, only the short-acting one is available in > tablet form – the long-acting one only as a suppository (it’s coming > in tablet form soon apparently). He was wary of prescribing Morphine > Sulphate due to the restrictions, and he feels he should go step by > step up to them rather than directly to them. He sees Morphine as > being one step up from Oxycodone. > So, we concluded that I’d be better off going to a pain management > specialist, who deals with this kind of stuff all the time. That makes > sense to me, but I wanted to give him a fair go first. But when he > kept bringing up the problem of the addictive properties of these > drugs… that kind of made up my mind :) At least he was pleasant > about the whole thing, and was happy to hear what I had to say. > Anyway, I’ve got a script for the Oxycodone. Is it worthwhile filling > it? It’s for 5 mg tablets, to work my way up from 1/2 tablet a day to > 1 1/2 tablets a day. Or should I just stick to the panadeine forte? > (paracetamol 500mg, codeine phosphate 30mg), which I know works > (although makes me feel a bit strange, but helps with the pain). > Now I just have to find a pain specialist who’s not afraid to > prescribe opiods if they are appropriate! I’ve got a couple of leads > from http://www.chronicpaininc.com/ and will be following them up. > That’s my update! > — > Katharine Maxwell > spamblock in action. Work it out!

Response:

<snip story of doctor visit> > Anyway, I’ve got a script for the Oxycodone. Is it worthwhile filling > it? It’s for 5 mg tablets, to work my way up from 1/2 tablet a day to > 1 1/2 tablets a day. Or should I just stick to the panadeine forte? > (paracetamol 500mg, codeine phosphate 30mg), which I know works > (although makes me feel a bit strange, but helps with the pain).

Katharine, For many of us these doses of oxycodone would be considered quite low (a common short-term med here [USA] is Percocet/Percodan which each have 5 or 4.5 mg of oxycodone plus tylenol or aspirin, repectively). Such low doses may work well for a patient who has no opiate use history and could work for you, since you have only used codeine up until now. However, the limits the doc put on your frequency of use may mean that you get only 4-6 hours of pain relief a day. Sounds to me like it is worth trying as a temporary measure until you get set up with someone in pain management. If you have the option of using the panadeine forte as a backup, keep it on hand. Dave Patterson or Bill Work are better to advise you on this, since you are being given pure oxycodone, there is little reason to worry about taking the panadeine forte too soon after the oxycodone. > Now I just have to find a pain specialist who’s not afraid to > prescribe opiods if they are appropriate! I’ve got a couple of leads > from http://www.chronicpaininc.com/ and will be following them up.

I hope one of them works out for you! — Hot Sun "There are lies, damn lies, and project management updates." Visit our humble Home page at http://members.home.net/mmart2/index.html To get my real address, remove the "nojunk" from it.

Response:

I hope you find some relief with the oxycodone…but it is short-acting.  At least the pain doc will be able to tell how much you will need for long-acting. — Bill Work

– Hide quoted text — Show quoted text -> Well, I went back to the doctor, armed with all my research and > new-found knowledge of treatment of chronic pain. I explained that the > panamax (Tylenol) didn’t do a thing, except suppress my appetite a bit > (bringing it back to normal – the Luvox has increased it). Waited to > see what he’d say. > He said he’d like to step me up one level – panadeine (paracetamol > 500mg, codeine phosphate 8mg). > I said I’d prefer not to, as I wasn’t happy being on medication which > was designed for short-term pain, and is also short-acting – I need > something that’s long acting. He also suggested straight codeine, but > I balked at that for the same reason. > He suggested something called celebrex, which he said is new. I asked > him what was in it, and he looked it up in the book and showed me. It > said it was a COX-2 inhibitor. He said something action on > prostaglandin… and that it was like the anti-inflammatories. The > book mentioned side effects such as stomach problems, but he said few > people had these problems. > Anyway, it looked like an NSAID to me, which I’ve had two courses of, > and they’ve had absolutely no affect. He said it also wasn’t just > that, but also acted as a pain killer, but I wasn’t convinced. Plus, > the book said it was indicated for conditions such as osteoarthritis, > and that’s nothing to do with what I’ve got (DDD). > So, I brought out the big guns, and layed out on the table my > printouts of info on Morphine Sulphate, and Oxycodone. He said he’d be > prepared to give me a script for Oxycodone, but only one at this > stage, as he has to get permission from the government as it’s a > restricted drug. Plus, only the short-acting one is available in > tablet form – the long-acting one only as a suppository (it’s coming > in tablet form soon apparently). He was wary of prescribing Morphine > Sulphate due to the restrictions, and he feels he should go step by > step up to them rather than directly to them. He sees Morphine as > being one step up from Oxycodone. > So, we concluded that I’d be better off going to a pain management > specialist, who deals with this kind of stuff all the time. That makes > sense to me, but I wanted to give him a fair go first. But when he > kept bringing up the problem of the addictive properties of these > drugs… that kind of made up my mind :) At least he was pleasant > about the whole thing, and was happy to hear what I had to say. > Anyway, I’ve got a script for the Oxycodone. Is it worthwhile filling > it? It’s for 5 mg tablets, to work my way up from 1/2 tablet a day to > 1 1/2 tablets a day. Or should I just stick to the panadeine forte? > (paracetamol 500mg, codeine phosphate 30mg), which I know works > (although makes me feel a bit strange, but helps with the pain). > Now I just have to find a pain specialist who’s not afraid to > prescribe opiods if they are appropriate! I’ve got a couple of leads > from http://www.chronicpaininc.com/ and will be following them up. > That’s my update! > — > Katharine Maxwell > spamblock in action. Work it out!

Response:

Well, I went back to the doctor, armed with all my research and new-found knowledge of treatment of chronic pain. I explained that the panamax (Tylenol) didn’t do a thing, except suppress my appetite a bit (bringing it back to normal – the Luvox has increased it). Waited to see what he’d say. He said he’d like to step me up one level – panadeine (paracetamol 500mg, codeine phosphate 8mg). I said I’d prefer not to, as I wasn’t happy being on medication which was designed for short-term pain, and is also short-acting – I need something that’s long acting. He also suggested straight codeine, but I balked at that for the same reason. He suggested something called celebrex, which he said is new. I asked him what was in it, and he looked it up in the book and showed me. It said it was a COX-2 inhibitor. He said something action on prostaglandin… and that it was like the anti-inflammatories. The book mentioned side effects such as stomach problems, but he said few people had these problems. Anyway, it looked like an NSAID to me, which I’ve had two courses of, and they’ve had absolutely no affect. He said it also wasn’t just that, but also acted as a pain killer, but I wasn’t convinced. Plus, the book said it was indicated for conditions such as osteoarthritis, and that’s nothing to do with what I’ve got (DDD). So, I brought out the big guns, and layed out on the table my printouts of info on Morphine Sulphate, and Oxycodone. He said he’d be prepared to give me a script for Oxycodone, but only one at this stage, as he has to get permission from the government as it’s a restricted drug. Plus, only the short-acting one is available in tablet form – the long-acting one only as a suppository (it’s coming in tablet form soon apparently). He was wary of prescribing Morphine Sulphate due to the restrictions, and he feels he should go step by step up to them rather than directly to them. He sees Morphine as being one step up from Oxycodone. So, we concluded that I’d be better off going to a pain management specialist, who deals with this kind of stuff all the time. That makes sense to me, but I wanted to give him a fair go first. But when he kept bringing up the problem of the addictive properties of these drugs… that kind of made up my mind :) At least he was pleasant about the whole thing, and was happy to hear what I had to say. Anyway, I’ve got a script for the Oxycodone. Is it worthwhile filling it? It’s for 5 mg tablets, to work my way up from 1/2 tablet a day to 1 1/2 tablets a day. Or should I just stick to the panadeine forte? (paracetamol 500mg, codeine phosphate 30mg), which I know works (although makes me feel a bit strange, but helps with the pain). Now I just have to find a pain specialist who’s not afraid to prescribe opiods if they are appropriate! I’ve got a couple of leads from http://www.chronicpaininc.com/ and will be following them up. That’s my update! — Katharine Maxwell spamblock in action. Work it out!

Response:

Neurontin for pain?

Question:

Has anyone heard of this? Any experiences?? — Christi Exquisite Essentials http://www.eeshops.com Tell me about your PETS! http://www.trilogyonline.com/ChristiConley/ >^,,^<         >^,,^<         >^,,^<         >^,,^<

~*~ Stampin’ Up! Demonstrator ~*~

Response:

I am on neurontin and I have mixed feelings about it.  Sometimes it seems to help and others, not much at all.  It also sometimes gives me odd feelings, like my nerves are kind-of jerking.  It has not stopped my "CPS with neurogenic features" (sheesh!) from progressing. However, I don’t want to come off it either as it is at least some help. Sorry to be so ambivalent about it.  I did have severe dizziness at first but this soon wore off. Sue A Jessie’s website: http://homepages.win.co.nz/creation/Jessindex.html

:Has anyone heard of this? :Any experiences?? : :– :Christi :Exquisite Essentials :http://www.eeshops.com :Tell me about your PETS! :http://www.trilogyonline.com/ChristiConley/ :>^,,^<         >^,,^<         >^,,^<         >^,,^< :~*~ Stampin’ Up! Demonstrator ~*~ : : :

Response:

I was started on it, but I was having side effects I didn’t like (like feeling slow, and not all there) so I never got up to a high enough dose to get any pain relief. Im starting another similar drug now, called Topamax. So far no bad side effects, but no pain relief, either. But again, I just started, so Im not sure how much more I have to increase before I can expect some pain relief if its going to work. Good Luck! Before you buy.

Response:

They say that neurontin is primarily to decrease likelihood o seizures occurring, but attempting to block neuro/nervous signal activity. Supposedly, less nerve signals can mean less pain signals as well. I took it for awhile, it worked some, no bad side effects that i noticed. oran >Has anyone heard of this? >Any experiences?? >– >Christi >Exquisite Essentials >http://www.eeshops.com >Tell me about your PETS! >http://www.trilogyonline.com/ChristiConley/ >^,,^<         >^,,^<         >^,,^<         >^,,^< >~*~ Stampin’ Up! Demonstrator ~*~

—–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 80,000 Newsgroups – 16 Different Servers! =—–

Response:

I am on my second trial with Neurontin.  While prescribed for severe neck, back, testicular pain, and a neuroma, I have found it MOST helpful in the treatment of FMS/CFS symptoms.  My dose is 300mg three times per day (after I had a "step-up" period).  I would highly recommend this med to anyone. Lyle www.my.webmd.com Prescription Drug Reference Gabapentin Neurontin

Getting off prilosec

Want to learn more? Find for more information about tums during pregnancy at our partner site AcidRefluxDiseaseGERD.com

Question:

I want to get off prilosec so badly, but it is almost like my body is addicted to it or something.  Has anyone else ever had this problem?  I want to have more children soon and prilosec is not safe to take during pregnancy.  I was told to slowly wean myself off the prilosec.  First every other day then every three days, etc.  Soon as I go just one day without it I get acid relux!!!!  It is so frustrating!  Does anyone have any suggestions??  Anything safe to take during a pregnancy for acid reflux?? (other than tums…they don’t do a thing for me).   I am starting to think I may never be able to have anymore children because of this darn acid reflux!!!

Response:

Re acid reflux.  I also have acid reflux and was taking Prilosec.  Just as it happened with you, once I stopped taking it my acid reflux came back.  I don’t want to take Prilosec forever either and searched for an alternative.  I have done some reading and found that cammomile may help with acid reflux and is safe to take during pregnancy. Deglyrrhized Licorice Root Extract is an herbal supplement that may help.  I just purchased for myself at local health food store. I don’t think it is something you should take if you are pregnant.  You should check with your doctor first.  Good luck and please let me know if you have any luck with cammomile tea or anything else you may be trying. Before you buy.

Response:

This is what I plan to do: since i take Prevacid (which btw from everything that i’ve read seems to be a better tolerated drug and as effective as Prilosec) and Prevecid capsules can be opened, I plan to lower the dosage from my usual 15 mg to approx 10 then 5 mg twice a day. My doctor does not agree that Prevacid capsules should be open, but what does he know :) . (currently I buy 30 mg capsules and split them myself into two as this effectivelly cuts the cost in half ($75/mo instead of $150). I don’t know if this can be done with Prilosec I have read that it’s important not to chew or crush the content, so I use empty glycerin capsules, i plam to start splitting one 15 mg into three 5 mg and take them as needed.  I will report back with my results. I plan to do this during the summer months as there is more variety of fresh fruits and vegetables to help me keep a stricter diet. I don’t know if this can be done with Prilosec I would welcome anybody to comment on this. i don’t see any danger with it and from my experience with other medicines, cutting the dose gradually and keeping the same schedule should work better than skipping  or cutting the medicine abruptly. chris

– Hide quoted text — Show quoted text -> I want to get off prilosec so badly, but it is almost like my body is > addicted to it or something.  Has anyone else ever had this problem?  I > want to have more children soon and prilosec is not safe to take during > pregnancy.  I was told to slowly wean myself off the prilosec.  First every > other day then every three days, etc.  Soon as I go just one day without it > I get acid relux!!!!  It is so frustrating!  Does anyone have any > suggestions??  Anything safe to take during a pregnancy for acid reflux?? > (other than tums…they don’t do a thing for me).   I am starting to think > I may never be able to have anymore children because of this darn acid > reflux!!!

Response:

The Prilosec capsules are designed to release the content after the pill leaves the stomach. In other words, Delayed-Release Capsules. Prilosec capsules should not be crushed or chewed. Prevacid is also a Delayed-Release Capsule however, the Prevacid prescribing information states the following: For patients who have difficulty swallowing capsules, PREVACID Delayed-Release Capsules can be opened, and the intact granules contained within can be sprinkled on one tablespoon of either applesauce, ENSURE

Pyloric stenosis

Question:

>Ursula,  My new grandson (human) has just been diagnosed with the same >problem.  He could not keep formula down if he was laid down at all.  Before >resorting to surgery, the pediatrician recommended that we try a special >formula that reduces acid reflux.  According to him, it’s a problem with >extreme rigidity of the muscle layer between the stomach and the intestines >that causes the food to back up. >So far the change in formula is giving some relief, but it’s really >diffficult to give him the proper nutrition by constant small >feedings —plus, he feels empty all the time.  Time will tell; but from the >information we were given, if surgery is necessary; it is quite simple and >reasonably safe (inasmuch as any surgery is safe).  Good luck to you and you >companion.

Both my brother and nephew had it (as well as older generations). Surgery was done, very simple, and problem permanently solved. Meghan Friesians in the Northwest http://www.zoocrewphoto.com/friesian.htm

Response:

Ursula,  My new grandson (human) has just been diagnosed with the same problem.  He could not keep formula down if he was laid down at all.  Before resorting to surgery, the pediatrician recommended that we try a special formula that reduces acid reflux.  According to him, it’s a problem with extreme rigidity of the muscle layer between the stomach and the intestines that causes the food to back up. So far the change in formula is giving some relief, but it’s really diffficult to give him the proper nutrition by constant small feedings —plus, he feels empty all the time.  Time will tell; but from the information we were given, if surgery is necessary; it is quite simple and reasonably safe (inasmuch as any surgery is safe).  Good luck to you and you companion.

Response:

Constant Hunger

Aciphex is a medication used to treat gestational acid reflux disease (GERD) and ulcers. Buy aciphex medicine and feel better today!

Question:

Dear Heather: I had this symptom also for a time.  I went to a gastroenterologist and was tested for H. Pylori – the bacteria that causes ulcers. I didn’t have H. Pylori and was told it was a reflux symptom.  For me, I figured out it was kind of like trapped gas in my stomach. I got relief by taking the herb catnip with my meals.  I don’t know if it would help everybody, but it helped me.  I hated that tummy growling all the time feeling.  It was really horrible. I hope you can find something that can help you.  BTW, I had previously already changed my diet to low fat, and cut out foods that gave me reflux symptoms, elevated my bed 7 inches, didn’t lie down within 3 hours of eating, etc.  If your problem is reflux, maybe making some changes in what you are eating or how you are eating might help it.  Since I had already made a number of lifestyle changes, this was a new symptom that just came out of the blue on me. Good luck. -Chris – Hide quoted text — Show quoted text -> I’m a 22 y/o female, and for about the past 3-4 years I have been > hungry A LOT!! I’m not referring to the "head" hunger for sugars, > carbohydrates, ets (comfort foods). I’m talking about the gnawing > feeling you get when you haven’t eaten for a while. Often, I am most > "hungry" after I eat!! On a rare occasion I get what I think is > heartburn – sharp, stabbing epigastric pain that radiates to my back and > is relieved with an antacid. > My question is, could this "hunger" that I think I’m having really be > mild heartburn or reflux? When I told my doctor I was hungry all the > time, she wanted to put me on a serotonin re-uptake inhibitor (to > control carbohydrate cravings) – But the cravings aren’t the real > problem, it’s the gnawing hunger. BTW, acid problems run in my family, > my dad has been treated for h. pylori, and my mom has irritable bowel > syndrome – we’re a messed up GI tract family :-) > Any thoughts would be appreciated. This is driving me nuts (I’m gaining > weight and can’t stop eating!!!!) > Thanks in advance – please post replies. > Heather

– Posted via Talkway – http://www.talkway.com Exchange ideas on practically anything ™.

Response:

Moses here: It could be that you have both acid reflux and an ulcer. I’d bet that the lifestyle changes plus a sufficiently large dose of PPI drug like Aciphex, Prevacid or Prilosec would relieve your symptoms in 2 or 3 weeks. Best Wishes Moses Clarke * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

Response:

I had the same problem with the hungry gnawing feeling. I would eat inbetween meals just to keep it at bay. A sour taste and then Heartburn followed a few weeks after this started. The only thing that helped was Prilosec 20 mg a day (A powerful Proton Pump Inhibitor to reduce stomach acid.) GI problems are also present in other family members. Chris and moses had several very good suggestions. Heartburn and Gastro Esophageal Reflux web page: http://www.heartburn-help.com

Response:

I’m a 22 y/o female, and for about the past 3-4 years I have been hungry A LOT!! I’m not referring to the "head" hunger for sugars, carbohydrates, ets (comfort foods). I’m talking about the gnawing feeling you get when you haven’t eaten for a while. Often, I am most "hungry" after I eat!! On a rare occasion I get what I think is heartburn – sharp, stabbing epigastric pain that radiates to my back and is relieved with an antacid. My question is, could this "hunger" that I think I’m having really be mild heartburn or reflux? When I told my doctor I was hungry all the time, she wanted to put me on a serotonin re-uptake inhibitor (to control carbohydrate cravings) – But the cravings aren’t the real problem, it’s the gnawing hunger. BTW, acid problems run in my family, my dad has been treated for h. pylori, and my mom has irritable bowel syndrome – we’re a messed up GI tract family :-) Any thoughts would be appreciated. This is driving me nuts (I’m gaining weight and can’t stop eating!!!!) Thanks in advance – please post replies. Heather

Response:

a new medicine for pain

Question:

me for pain that has no side affects on the stomach or liver….the name of it is Celebrex (Celecoxib) she says it is new on the market and i have yet to find anything about it but i will be doing some research on it today…..i’m in recovery and can not take any narcotics for pain plus with a bad stomach and hepatitus c i have to be very careful of what i take….i will let you know if this works….i’m on 300mg of ultram right now and it does not help the pain in the back and legs which makes walking out of the question…. peggy

Response:

Hello Peggy, I have been on Celebrex 200mg. for about three weeks now and I can’t really say it has helped me at all.  I do know that when I started taking it, I had stomach problems for a couple days.  Hope it works for you…..Fatron & PJ

Response:

>me for pain that has no side affects on the stomach or liver….the >name of it is Celebrex (Celecoxib) she says it is new on the market >and i have yet to find anything about it but i will be doing some research on it today.

I hope you do your investigation soon. COX-2 Inhibitors and Celebrex – Safe or Suspect?     http://onhealth.com/ch1/in-depth/item/item,40354_1_1.asp

Response:

Response:

Don, again I want to thank you for some valuable information.  I am just using samples right now and think I may have to talk to my doctor about this when I go see him this coming Wednesday.  Thanks again…….Fatron & PJ

Response:

Hey Peggy, I was on Celebrex for 2 months, but stopped taking it cause it didn`t help me. I hope                                                      Good Luck JanisD — janisD in SaultSte.Marie  (

Breastfeedng ?

Question:

The following advice is a bit over the top–DON’T panic over it–it IS NOT strange for BF babies to do this.  (See second set of advice for why it is normal below.) Not that you can’t hook up with the LLL, you just don’t NEED to do it! >>Get thee to a La Leche League Leader!!!   You are having a strab=nge >>problem, if the baby takes the breastmilk fine from a bottle, but spits up >>from your breast.   Try feeding her breastmilk from a bottle until you can >>get to a LLLL.   They are the experts on breastfeeding, not the doctors. >>Good luck, >>Norma

The following is good advice, and probably what the LLL people will tell you to do–just shorten the feeding a bit–a couple of minutes at a time until your child no longer vomits.  Example:  if you normally feed him for 20 minutes total, shorten to , say, 18, then 16, etc. until he no longer vomits–probably about a 25% reduction in time will do it, it did for me w/my youngest and with a few other people I know who had the same problem. >>My son did this once.. and I had no clue what was happening- then I figured it >>out.. While he was nursing I had no idea ho wmuch he was eating- figured out >>that he was actually eating so much that he couldn’t hol dit all in– but with >>a bottle you know exactly what is going in his belly and what isn’t.  SO I >>basically gave him a shorted time at the breast- and he stopped spitting

up.

Response:

This does sound suspiciously like Overactive letdown. It is when the milk comes out too forcefully for baby to drink it and baby gulps and swallows air trying, thus causing the gas. Here’s a helpful link: http://www.lalecheleague.org/LVoveractive.html

  bjpind.vcf

< 1K Download

Response:

Oops, sorry I hit the send button before I was done… Let’s try this again. > : Hi!! > : I am new to the group and I have a question that no one seems to be able > : to answer for me. Not even my doc. > : I have a 3 month old and I breastfeed only. But everytime she is really > : hungrey. She spits up everything I just feed her. It’s not chunky its > : liquid just like when she drank it.

I’ll bet you dollars to donuts, she’s not spitting up EVERYTHING you just fed her, although it might seem like it.  I have 3 children, and my younger 2 would both spit up voluminous amounts of breastmilk after (or during) feeding.  They would absolutely entirely drench us both (‘burp’ cloth? what ‘burp’ cloth? HA!), and so I no longer carried a diaper bag, but a duffle bag, with complete changes of clothes for both of us.  This happened constantly, but I knew there was family history of it — my husband and his brother both had had this problem as infants. My 2 sons, despite spitting up so much, continued to gain wait and smile and coo with pink chubby cheeks.  If your baby isn’t losing weight, I would guess she’s all right.  I was not able to solve the problem.  My sons each just outgrew it in a couple of months. In my case, I do suspect my milk production was much more efficient with subsequent babies than it was with my first.   My boys could fill their tummies in 5-10 minutes, where it would take my daughter (first born) about 40 minutes. Sorry I can’t offer a solution, but hopefully I can offer comfort.  Especially if your daughter is not losing weight. Good luck, Suzanne.

Response:

I have the same kind of experience … My 2.5 month old daughter also seems to spit up all her milk. But our doctore actually said that it was a sign of good health … as long as she is gaining weight and seems altogether happy … she eliminates the excess milk she took in. There is nothng to worry about except the extra laundry … Christina

Response:

Thanks for all of the respones. I went and bought a breast pump. So when I feel that my milk is too full I just pump and then give it to her. I try to get her on the breast as much as I can and this seems to be working. PS it was an overactive let down.

Joanne

Rikki 1-24-96 & Jissi 1-14-99

Angels Among Us

Response:

My daughter was the same way — threw up "everything" every time she fed. Well, she got sick and I learned just how much she was getting at each feeding, and stopped worrying about what she was spitting up.  Your baby is probably only spitting up a tablespoon or so — a small fraction of what she’s taking in.  Someone suggested to me spilling a tablespoon or two of milk on the counter to see what a mess it made — you realize how little they are actually spitting up. Elsie – Hide quoted text — Show quoted text – >I have the same kind of experience … My 2.5 month old daughter also seems >to spit up all her milk. >But our doctore actually said that it was a sign of good health … as long >as she is gaining weight and seems altogether happy … she eliminates the >excess milk she took in. There is nothng to worry about except the extra >laundry … >Christina

Response:

Joanne, I am having the same problem but with an even worse twist.  My little one does the same thing you spoke of but in addition, she fusses so much at the breast sometimes and won’t latch on if her life depended on it.  But she will take it fine if I express it and give it to her from the bottle. She’ll scream at the breast and I don’t know why. Some of my thoughts on the spitting up aspect are twofold.  I found that with my daughter, if she had air in her stomach, it would force the milk right back out when she ate.  If she sounds like she is gulping hard or you can hear the air, continue to burp her until the milk goes down smoother. That stopped some of the spit up during the feeding.  Second, I also discovered from pumping that the milk comes out of several spots and may shoot four or five streams whereas the bottle only has one hole.  I think that the milk may come out faster from me (your flow may be different) which may also have caused my daughter to spit it back up.  It may have been going down too fast and too strong.  Do you have the crying and fussing problem before she starts to feed at all?  I’d love to get some advice on that.  I’m pumping every feeding with the exception of the two night feedings which she seems to take fine for some reason!  All the daytime ones is a battle with her.  Maybe she doesn’t have to work as hard on the bottle and likes to be feed that during the day and maybe at night she is just too darn tired to bother fussing. Hope this helps you. Cindy – Hide quoted text — Show quoted text – >: Hi!! >: I am new to the group and I have a question that no one seems to be able >: to answer for me. Not even my doc. >: I have a 3 month old and I breastfeed only. But everytime she is really >: hungrey. She spits up everything I just feed her. It’s not chunky its >: liquid just like when she drank it. >: But when I give her breastmilk in a bottle she doesn’t do this and is >: happy. >: I think that alot of docs have lost touch with breastfeeding. They don’t >: seem to understand anything I ask about breastfeeding. Please help. I am >: worried my daughter Jissi is not getting enough to eat. Although I know >: that is stupid. Because babies cry if they are hungrey and she seems to >: be happy alot of the time. >: Also she has alot of gas and I have tryd chaning everything I eat and it >: doesn’t stop. >: Any answers? >I certainly agree that a lot of doctors are ignorant about >breastfeeding. >I’ve breastfed two but never had the throwing up problem when my kids >were healthy, but I *think* there are a couple of things that might >cause it; for instance, overactive letdown and reflux. >However, rather than get in over my head, I am going to risk a breach of >netiquete and cross-post this to misc.kids.breastfeeding…I think every >conceivable BF problem has been experienced by someone in that group, and >I’m sure they can give you some suggestions. >m.k.b. folks–this originally appeared in alt.parenting.solutions, but I >hope you don’t mind that I diverted it here. >Laura Uerling

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Just keep in mind that the more comes out of your breast, the more milk will be there tomorrow.   Breasts makes as much milk as is milked from them.  Good luck. Norma     Thanks for all of the respones. I went and bought a breast pump. So when     I feel that my milk is too full I just pump and then give it to her. I     try to get her on the breast as much as I can and this seems to be     working. PS it was an overactive let down.

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> (‘burp’ cloth? what ‘burp’ cloth? HA!)

We just call then DROPcloths. — Ivy —

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I actually did the "spill some milk and see how much it looks like" thing.  It really works!  A tablespoon or two actually does look like a lot more when spilled out.  Especially when poured down your back. ;-) If still in doubt, take a full cup or two cups of milk and spill that down your back.  Now compare.  That much milk would drench you, your shirt, your pants, and still have lots left over to make a royal mess on the floor! Take Care! Vicki Surratt Proud Mom of Kathy (6) and Jenny (9)! :-) – Hide quoted text — Show quoted text – > My daughter was the same way — threw up "everything" every time she fed. > Well, she got sick and I learned just how much she was getting at each > feeding, and stopped worrying about what she was spitting up.  Your baby is > probably only spitting up a tablespoon or so — a small fraction of what > she’s taking in.  Someone suggested to me spilling a tablespoon or two of > milk on the counter to see what a mess it made — you realize how little > they are actually spitting up.

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>… > If still in doubt, take a full cup or two cups of milk and spill that > down your back.  Now compare.  That much milk would drench you, your > shirt, your pants, and still have lots left over to make a royal mess on > the floor!

Well, actually, that IS what my babies did to me ;-) That’s why I carried a suitcase everywhere. But they still were happy growing boys :-) Suzanne. Tucson, AZ

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>Hi there.  I hope that this will help you out some.  All five of my kids as >babies puked up everything that they ate.  And I mean everything.  Reflux (GER) >is heridatry on my husbands side of the family and all of my kids had it in one >form or another.  Doctors kind of look at you weird when you bring up GER >because they say that "all babies spit up".

Yeah, they do.  I had two different peds that just claimed my daughter’s problem was colic. They changed that diagnosis when we almost lost her from her asperiating the vomit.  Amazing thing though..when they finally put her on medication, the congestion that had been present for 3 weeks cleared up, and so did the colic. Duh. There are >medications that can be given but they all have really nasty side effects.  My >youngest was the first that was given an antacid and it made the vomiting >worse!   Just where you know the way that GER is usually diagonosed is with an >upper GI.

Kelly was prescribed a medication that had no side effects, though I can’t for the life of me remember the name. It was a pink liquid that was given ever other feeding, about 15 minutes before.  Worked really well. She was able to come off the medication in about 6 months. Walk by the light of the Moon Llyra ICQ #4128184

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Hi there.  I hope that this will help you out some.  All five of my kids as babies puked up everything that they ate.  And I mean everything.  Reflux (GER) is heridatry on my husbands side of the family and all of my kids had it in one form or another.  Doctors kind of look at you weird when you bring up GER because they say that "all babies spit up".  The last ped we had didn’t believe me until the youngest left a great big puddle on his floor!  Anyway, the reason that the bottle may help keep things down is the position that the baby is being held while feeding.  Babies with reflux need all the help of gravity they can get.  (I had to resort to doing this with one of my children).  After feedings they need to be kept upright 20 to 30 minutes where gravity can do it’s job (doesn’t always work well, but it helps).  I was also told the elevate the head of the crib, playpen, where ever the child sleeps, 30 degrees.  You can also get reflux wedges that you lay the baby on that does this.  I was also told not to let them sleep on their back (before my first child was diagonosed she was put to sleep on her back and I found her blue several times where she had asperated the vomit), to put them on either thier side or stomach (stomach works best for gravity).  I was also told that a teaspoon or two of cereal in the bottle will help thicken things to help keep it down (although I never did this).  There are medications that can be given but they all have really nasty side effects.  My youngest was the first that was given an antacid and it made the vomiting worse!   Just where you know the way that GER is usually diagonosed is with an upper GI.  We had to put the oldest through this along with a CAT scan, apenea moniter and everything.  After she was diagonosed, and then my nephew, the drs. ruled genetics and didn’t put my other 4 children through the tests.  My neice was so bad she had to have several surgeries (rare case, don’t panic).  My in-laws have 10 grandchildren and they all have done this.  The good news is they do out grow it between 6 months and a year.  The bad news is it does increase the chance of SIDS.  Keep breastfeeding!  Formula makes it worse because it is harder to digest, and watch the babies weight.  A lactation consultant or someone from the LLL can help with feeding and reflux. Georga – Hide quoted text — Show quoted text – > Hi!! > I am new to the group and I have a question that no one seems to be able > to answer for me. Not even my doc. > I have a 3 month old and I breastfeed only. But everytime she is really > hungrey. She spits up everything I just feed her. It’s not chunky its > liquid just like when she drank it. > But when I give her breastmilk in a bottle she doesn’t do this and is > happy. > It’s hard for me to tell from what you have said here exactly what is > happening, but I can think of a couple of possibilities. It may be that you > have an overactive letdown – in other words, your milk flows very fast and > quite forcefully. This often makes the baby gulp down a lot of air with the > milk, and then when the air comes back up, she spits up a lot, too. > Does she seem to gulp or splutter when she is nursing? Have you ever noticed > milk spraying out when she lets go? Those could be signs of an overactive > letdown. > Are you scheduling feedings or trying to stretch out the time between > feedings? That can also lead to this problem, even if  you don’t have an > overactive letdown, because the baby is so hungry that she gulps down the > milk. > Why are you giving her bottles of breastmilk? > I think that alot of docs have lost touch with breastfeeding. They don’t > seem to understand anything I ask about breastfeeding. Please help. I am > worried my daughter Jissi is not getting enough to eat. Although I know > that is stupid. Because babies cry if they are hungrey and she seems to > be happy alot of the time. > Also she has alot of gas and I have tryd chaning everything I eat and it > doesn’t stop. > Any answers? > Well, crying or not crying is not a good way to determine if the baby is > getting enough to eat. Some babies who are getting lots of milk will cry, > some who are starving to death will not cry. A better way is to check that > she has at least six soaking wet diapers in 24 hours, and that her bowel > movements are soft and yellow. > Gassiness can also be caused by this overactive letdown, as these babies > swallow a lot of air. Another cause of gas is a foremilk/hindmilk imbalance, > often related to overactive letdown, where the baby gets too much of the > high-sugar foremilk and not enough of the high-fat hindmilk. These babies > sometimes have green, almost explosive bowel movements as well. > One idea that has worked for some mothers that you could try: Try feeding > one breast per feeding. If that doesn’t help, try feeding one breast in a > four hour period, no matter how many times the baby comes back to the > breast, then switch to the other breast for the next four hours. > Teresa

Response:

Hi!! I am new to the group and I have a question that no one seems to be able to answer for me. Not even my doc. I have a 3 month old and I breastfeed only. But everytime she is really hungrey. She spits up everything I just feed her. It’s not chunky its liquid just like when she drank it. But when I give her breastmilk in a bottle she doesn’t do this and is happy. I think that alot of docs have lost touch with breastfeeding. They don’t seem to understand anything I ask about breastfeeding. Please help. I am worried my daughter Jissi is not getting enough to eat. Although I know that is stupid. Because babies cry if they are hungrey and she seems to be happy alot of the time. Also she has alot of gas and I have tryd chaning everything I eat and it doesn’t stop. Any answers? JOANNE

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My son did this once.. and I had no clue what was happening- then I figured it out.. While he was nursing I had no idea ho wmuch he was eating- figured out that he was actually eating so much that he couldn’t hol dit all in– but with a bottle you know exactly what is going in his belly and what isn’t.  SO I basically gave him a shorted time at the breast- and he stopped spitting up. Well, he still spits up- but not in that form.  He’s a goooood eater- and eats so fast that he never seems to stop to think that he’s full. Mel (mommy of Nathan Chad) http://www.angelfire.com/tx2/BabyNate

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: Hi!! : I am new to the group and I have a question that no one seems to be able : to answer for me. Not even my doc. : I have a 3 month old and I breastfeed only. But everytime she is really : hungrey. She spits up everything I just feed her. It’s not chunky its : liquid just like when she drank it. : But when I give her breastmilk in a bottle she doesn’t do this and is : happy. : I think that alot of docs have lost touch with breastfeeding. They don’t : seem to understand anything I ask about breastfeeding. Please help. I am : worried my daughter Jissi is not getting enough to eat. Although I know : that is stupid. Because babies cry if they are hungrey and she seems to : be happy alot of the time. : Also she has alot of gas and I have tryd chaning everything I eat and it : doesn’t stop. : Any answers? I certainly agree that a lot of doctors are ignorant about breastfeeding. I’ve breastfed two but never had the throwing up problem when my kids were healthy, but I *think* there are a couple of things that might cause it; for instance, overactive letdown and reflux. However, rather than get in over my head, I am going to risk a breach of netiquete and cross-post this to misc.kids.breastfeeding…I think every conceivable BF problem has been experienced by someone in that group, and I’m sure they can give you some suggestions. m.k.b. folks–this originally appeared in alt.parenting.solutions, but I hope you don’t mind that I diverted it here. Laura Uerling

Response:

Get thee to a La Leche League Leader!!!   You are having a strab=nge problem, if the baby takes the breastmilk fine from a bottle, but spits up from your breast.   Try feeding her breastmilk from a bottle until you can get to a LLLL.   They are the experts on breastfeeding, not the doctors. Good luck, Norma

Hi!! I am new to the group and I have a question that no one seems to be able to answer for me. Not even my doc. I have a 3 month old and I breastfeed only. But everytime she is really hungrey. She spits up everything I just feed her. It’s not chunky its liquid just like when she drank it. But when I give her breastmilk in a bottle she doesn’t do this and is happy. I think that alot of docs have lost touch with breastfeeding. They don’t seem to understand anything I ask about breastfeeding. Please help. I am worried my daughter Jissi is not getting enough to eat. Although I know that is stupid. Because babies cry if they are hungrey and she seems to be happy alot of the time. Also she has alot of gas and I have tryd chaning everything I eat and it doesn’t stop. Any answers? JOANNE

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I had a similar problem……my son spit up all the time…..it continued until he was about a year old.  I breastfed for 6 months, but I felt like he was spitting up everything I just fed him.  My pediatrician tried reassuring me that it just *looks* like he was spitting up everything he just drank, when in reality he was only spitting up a small amount.  He told me that a few tablespoons can look like alot, but if you actually measure out the tablespoons, it really isn’t that much…..take a few tablespoons out of a 4 ounce bottle and you’ll see that it doesn’t make much of a difference. But because my son was breastfeeding, I couldn’t tell exactly how much he was drinking and I was worried that he wasn’t drinking enough also.  But, his diapers were wet, and he was gaining weight appropriately so my doc said he was obviously nourishing himself. I can’t answer why she doesn’t do it with a bottle.  You might try talking to a lactation consultant……your local hospital should have a few on staff, or the materinity ward should be able to direct you to one.  I found they had more answers than my doctors did.  Good luck -Treelo – Hide quoted text — Show quoted text – > Hi!! > I am new to the group and I have a question that no one seems to be able > to answer for me. Not even my doc. > I have a 3 month old and I breastfeed only. But everytime she is really > hungrey. She spits up everything I just feed her. It’s not chunky its > liquid just like when she drank it. > But when I give her breastmilk in a bottle she doesn’t do this and is > happy. > I think that alot of docs have lost touch with breastfeeding. They don’t > seem to understand anything I ask about breastfeeding. Please help. I am > worried my daughter Jissi is not getting enough to eat. Although I know > that is stupid. Because babies cry if they are hungrey and she seems to > be happy alot of the time. > Also she has alot of gas and I have tryd chaning everything I eat and it > doesn’t stop. > Any answers? > JOANNE

Response:

Hi!! I am new to the group and I have a question that no one seems to be able to answer for me. Not even my doc. I have a 3 month old and I breastfeed only. But everytime she is really hungrey. She spits up everything I just feed her. It’s not chunky its liquid just like when she drank it. But when I give her breastmilk in a bottle she doesn’t do this and is happy. It’s hard for me to tell from what you have said here exactly what is happening, but I can think of a couple of possibilities. It may be that you have an overactive letdown – in other words, your milk flows very fast and quite forcefully. This often makes the baby gulp down a lot of air with the milk, and then when the air comes back up, she spits up a lot, too. Does she seem to gulp or splutter when she is nursing? Have you ever noticed milk spraying out when she lets go? Those could be signs of an overactive letdown. Are you scheduling feedings or trying to stretch out the time between feedings? That can also lead to this problem, even if  you don’t have an overactive letdown, because the baby is so hungry that she gulps down the milk. Why are you giving her bottles of breastmilk? I think that alot of docs have lost touch with breastfeeding. They don’t seem to understand anything I ask about breastfeeding. Please help. I am worried my daughter Jissi is not getting enough to eat. Although I know that is stupid. Because babies cry if they are hungrey and she seems to be happy alot of the time. Also she has alot of gas and I have tryd chaning everything I eat and it doesn’t stop. Any answers? Well, crying or not crying is not a good way to determine if the baby is getting enough to eat. Some babies who are getting lots of milk will cry, some who are starving to death will not cry. A better way is to check that she has at least six soaking wet diapers in 24 hours, and that her bowel movements are soft and yellow. Gassiness can also be caused by this overactive letdown, as these babies swallow a lot of air. Another cause of gas is a foremilk/hindmilk imbalance, often related to overactive letdown, where the baby gets too much of the high-sugar foremilk and not enough of the high-fat hindmilk. These babies sometimes have green, almost explosive bowel movements as well. One idea that has worked for some mothers that you could try: Try feeding one breast per feeding. If that doesn’t help, try feeding one breast in a four hour period, no matter how many times the baby comes back to the breast, then switch to the other breast for the next four hours. Teresa

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Endoscope

Question:

I may have to have an endoscope of my stomach and I am apprehensive. Would appreciate any info. Thank you Charlie

Response:

> I may have to have an endoscope of my stomach and I am apprehensive. > Would appreciate any info. > Thank you > Charlie

Just had one in October. I was in bad shape due to stress at the time, so was extremely nervous about the procedure. I was also very anxious about the conscious sedation. I forget the name of the sedative (it tends to give you no memory of the procedure). My doctor agreed to limit the amount given, and gave me a higer dose of demoral (spelling?). Anyway, I remember the procedure and it went easy and fine. I have a terrible gag reflex and only gagged as the scope went in. After that it was a piece of cake. So take my word for it, it is not worth the time you will waste worrying about  the procedure (I wasted a lot for nothing). Good luck and hope your results are good.

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>I may have to have an endoscope of my stomach and I am apprehensive. >Would appreciate any info.

The endoscope is a breeze…Generally you are sedated. Some people are totally out.  I am the worlds worst gagger and I had no problems. Very quick procedure. Heartburn and Gastro Esophageal Reflux web page: http://members.aol.com/HawkTear/index.html

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>I may have to have an endoscope of my stomach and I am apprehensive. >Would appreciate any info.

I was deathly afraid of the endoscope test. I explained my fears to my dr. Took a Xanax the night before and very early on the morning of the test (scheduled at 11:00 am). I was completely sedated during the test. They even gave me something so I couldn’t remember anything. So I didn’t know anything during the test or afterwards. My throat was just a little sore that evening and the next morning but other than that no problems. I hope I never have to have it done again but I won’t be as afraid. Good luck. If you have any questions, please feel free to send me email.

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>I may have to have an endoscope of my stomach and I am apprehensive. >Would appreciate any info. >Thank you >Charlie

Charlie, Just give in to the sedation.  Drift with it.  Relax as much as possible. Don’t try to swallow.  The doctor will do the work.  It is not at all painful. Just a little scary because of the gag reflex.  I really did not experience any discomfort.   Carol 2 …an older slower model with insufficient memory…

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> I may have to have an endoscope of my stomach and I am apprehensive. > Would appreciate any info. > Thank you > Charlie

I had an endoscopy about eighteen months ago. I was more afraid of the sedative injection than the actual procedure, so I decided to forego the sedative. The procedure went well and just left me with a sore throat. It certainly isn’t worth worrying about. Good Luck. —  _ |_) _ |_ |_)(_)|_) @barium.demon.co.uk

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>I may have to have an endoscope of my stomach and I am apprehensive. >Would appreciate any info. >Thank you >Charlie

In contrast to others who’ve posted, I had things to do that day so out of the choice of sedation or a local anaesthetic I chose the local. The back of my throat was sprayed with a bitter-tasting liquid which then felt very warm for a few seconds, after which it went pleasantly numb. I lay on my left side and was asked to swallow the tube, at which point I gagged a little. I followed the nurse’s advice and took deep breaths through my nose, which helped a lot. There was no pain at all – my biggest problem was trying to keep my tongue from touching the tube as it was pushed down, as it felt odd. The sensation of a scope in your stomach is also odd, but not painful – unless like me you start thinking of any of the ‘Alien’ films. It was unpleasant, yes, in the sense you wouln’t want one every week, but I repeat, never painful. It was over very quickly, and I was glad I hadn’t wasted a day on being tranked up to the eyeballs. I was able to go home and eat a decent meal and reward myself with a few glasses of wine (what the hell!) which I shouldn’t have been able to do had I had the drugs. Remember this happened in provincial England, on the NHS. Procedures in hospitals in other countries may differ.                                                           Simon Pride                                               Technical User Services                             University of Cambridge Computing Service

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